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Old 01-22-2010, 01:26 PM #1
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Dejibo Dejibo is offline
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Location: New Hampshire
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Dejibo Dejibo is offline
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Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default You are just not trying hard enough! (a rant)

Do you friends, and or family make you feel like you are just not trying hard enough to beat this thing?

I have run into a rash of friends, and family lately that have peppered me with statements that sorta make me feel like I am just not trying hard enough.

Several friends, and some family members are really pushing me pretty hard about dietary stuff. Many think if I just switched back to a gluten free diet, that many of my issues would simply disappear. I have gone back to GF for the last 10 days just to test the waters. So far, I see no change. I was GF for years! the DD is a severe celiac and cross contaminates were making her sick. We were strict in this house for years. I still got MS even while on a GF diet. I had an endoscopy done recently, and asked for Celiac biopsies to be done just to be sure. All were negative and the GI dude told me I am clearly not Gluten intolerant nor am I celiac. Stop worrying. So, why do I let my friends, and family get to me?

Another group is on the "if you would just see my specialist!" They vary from person to person, but generally its a friend who wants me to see anything from a "native american healer" to some weird lady who is a 3 hour drive from my house, and will charge me $1000 dollars for the initial visit. Then she will load me up with suppliments to "rid me" of all of the unwanted build ups of whatever I have accumulated over the years to make me sick in the first place. If I would just go see their "healer" my life would turn around! isnt it worth a thousand dollars to make MS go away?!

Yet another group, wants me to try every new BS snake oil that comes along. I cant tell you how many bottles of Mona Vie juice I have been given. I have several of Mangosteen as well. I have a box full of suppliments that friends have brought along with the books that come with them, to explain how to change my life with just one pill!

Another group just wants me to change the way I eat. I have been given books and computer links to the "swank diet" the "makers diet" the "gluten free club" the "dairy free clubs" the "salt free lifestyle" The "eat more of this or eat less of that and cure what ails you clubs"

Im tired! I just want my friends and my family to acknowledge how hard I am trying! I take my shot everyday, even thru the side effects, even thru the not feeling well because of it. I attend every medical appointment scheduled. I do my OT, PT, and so forth. I eat an extraordinarily clean diet. I am organic, and eat tons of protien. I am very close to the makers diet. I am a good christian. I am a good neighbor. I am a good person, and yet, I have a gaggle of friends who just want to keep me busy trying "just one more thing"

When do you reach a point where your friends just calm down and let you have MS? Am I alone in this? Or do the rest of you get surrounded by folks who make you feel like you are just not trying hard enough to cure a disease that has no cure?
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