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Old 12-20-2010, 09:34 AM #11
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Becca44 Becca44 is offline
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Join Date: May 2007
Location: Minnesota
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Becca44 Becca44 is offline
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Becca44's Avatar
 
Join Date: May 2007
Location: Minnesota
Posts: 335
15 yr Member
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Hi Catch!
Lipoatrophy is the reason I chose to discontinue Copaxone. It's a known side effect of that injectible med. I find it disappointing (and was similarly instructed btw) that a Shared Solutions nurse didn't acknowledge that fact instead of implying you were somehow injecting incorrectly.

I suspect your neurologist has heard of lipoatrophy associated with Copaxone before but I'd definitely bring it up anyway - I don't think everyone experiences it and it's always a good idea to keep the doc in the loop.

In my particular situation, I told my neuro it was the ONLY reason I was considering going off the drug. He heard my complaint, we agreed I'd stay on Copaxone for another 3 months to see if the situation worsened or stabilized ....and I promised to RELIGIOUSLY rotate the sites (which I was already doing but hey, I had to bring something to the table ).

Needless to say I still got divits, they bothered me and I quit injecting Copaxone. The neuro was supportive because we'd partnered in the decision so I guess that's my only advice: keep the doc informed and let him know what's working for you and what's not. It's your body.

becca44
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