ok here is my story can you tell me if this is MS possibly cus im going crazy:
Three years ago i woke up with weird tingling lips, throughout the day it got worse and my entire bottom half of my face went completly numb and my mouth drooped like i was having a stroke, rushed to the ER they thought i was having a TIA turns out i wasnt. started seeing a dr who ruled out lupus, lymes, RA, fibromyalgia, and alot of other things. sent me for and brain MRI which he said looked ok. since then ive had 3 more big episodes and each time, it scared the heck out of me! i get a lot of sypmtoms as well which are
MAJOR dizziness
lightheaded
numbness/tingling of hands, feet, legs and arms,
a feeling like something is crawling on me
MASSIVE fatigue
sensative to heat
hives
feeling like my head is to heavy for my neck (like a bobble head kinda)
the tingling of my lips still
muscle twitches/spasm all over!
back pain
shocking pains in mainly my arms and hands, like i stuck my finger in a light socket
problems with my vision, mainly just blurred vision,
constant headaches
MAJOR memory issues and cloudy head on top of clumsiness
bladder issues
and im sure there is more that i am leaving out
Its affecting my everyday life, i have no energy, i dont know how much longer i can go with feeling like this on a daily basis. ive had 3 drs tell me it sounds like MS i go in today for a MRI of c spine and lumbar spine. but i dont see a nuero till the first. today i feel like im having an episode my mouth is going numb again.; all i wanna do is try to sleep it off but then ill go again without really spending time with my kids. does any of this sound like MS to any of you.

forgot to mention that my vitamin d level was at a 4!!! and that was with taking 1000 IU a day. and the trembling as well,

i was in the er two weeks ago, cus it felt like i was having a heart attack, my upper chest and lower throat felt like it was closing in, got really really tight i read that that might be what is called and MS HUG? i only get it in my upper chest and also in my throat, or front of my neck

Welcome to Neuro Talk. I am glad you found this site. There are lots of good folks here that can address your symptoms, and maybe give you some direction. It is never fun, when you have a list of horrible symptoms that no one can make heads or tails out of it. I do think your New neurologist on the 1st. will be able to sort things out better. We do have an MS Forum, and yes many of your symtoms have occured with those that do have MS, These kinds of medical issues are sometimes so hard to diaganose, because other illness presents in a similar way. You have to get that good doctor to Give you a diagnosis, so you can begin to get some kind of treatment to address your symptoms. I hope lots of people respond to you and give you good encourgement while you go through these tests and doctors visits. Please feel free to ask any of us questions. At the top part of the opening page, There is a "search" bar which you can type in MS. That should get you to the forum that talks about it. In the meantime, I am so glad you found this site. We will be here to talk to you anytime you need it. ginnie

i thought i posted this thread in the MS section

Welcome to NeuroTalk Candace, nice to meet you. I'm so sorry for all your pain and anxiety and I hope your upcoming MRI gives you some answers.

It could be MS among a few other diseases. MS is hard to DX. Usually they have to eliminate all the other possibilities before coming to a DX decision.

Stick with us through the process and we will try to make you feel welcome and give you some answers to your questions.

You did post in the right forum. Just feel free to enter into any other one that you might need. People often talk about MS and MG and other neuro problems on each others site. I had them confused, not you. I try to write down who the people are with their conditions so I don't get mixed up. I hope you make alot of friends here. I just go around the boards trying my best to bring some comfort and hellos' to the new folks. Have a good night. ginnie

MS is sooo tricky! There are more than 100 diseases that can mimic MS including brain lesions! No wonder so many MDs are hesitant to give you that label. Its a process of ruling out stuff. They try the easy stuff first like the vitamin stuff with blood work. The bloods will also show markers for things like lupus, sjoghrens, and other things. if those are normal, they move on to things that show on MRI, such as how many lesions, where are the lesions? do you have body symptoms that match lesion placement? and so forth. Once they rule out all they can rule out with PROOF such as a blood test, they are left with a handful of orphan diseases like Devics, ALS, and so forth. They will pick the disease that is MOST likely to cause YOUR symptoms.

No two MS patients are exactly alike. What makes your feet buzz, may make mine completely numb or what makes me dizzy and off balance may have no effect on you. it all depends on lesion placement, depth, and active levels.

BEFORE you get that label, PLEASE get as much insurance as you can. Life, health, disability...Once you get that label, trust me everyone will turn you down.

Best of luck to you. (( hugs))

I pray that everyone that reads this about insurance will take note. The insurance or lack there of can deal you a hardship. I had pre-existing conditions from the time I was 29. I had no health insurance, and was never given the chance for any. My folks couldn't even afford the premiums because of these conditions. When I did wind up with severe troubles medically, it wiped out what two generations saved for. My middle income life, joined the ranks of the poor. It hurts, because I did work 30 years. I so hope everyone can get insurance. I would not want anyone to have to go through what I did. ginnie

I have health insurance through my hubby and life insurance on our house (it's in the mortgage that if either of us die it gets wiped clear) because we got those when I was 19. Actual life insurance I now can't get. When my hubby got Aflac for him and the kids the guy came to our house to do paperwork. He asked why we weren't putting it on me and DH said that he thought the wouldn't cover me, he explained all my conditions and the guy said oh yeah we definitely can't cover her!

I actually started looking for a dx before I had insurance a little but was told that if I had anything major I needed to wait until I had health insurance to press on so that it wasn't a pr-existing condition.