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Old 07-14-2013, 03:28 AM #1
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Default Restless Legs

Please tell me how to stop restless legs!! I use to have them bad a long time ago, like 10 years ago, now its like the past week it has just been awful! I try to sleep, they want to play lol - when I'm sitting down they are fine. Any cures to this?!
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Old 07-14-2013, 10:57 AM #2
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In my mind RLS is one of the most frustrating and maddening symptom of MS. The only thing I have found to help is Pramipexole.
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Old 07-14-2013, 12:03 PM #3
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I take Baclofen every night before bed. My legs don't really give me much of a problem until around 6 PM. And they get increasingly restless until I go to bed. I have to take my first Baclofen around 6 PM and then every 4 hours or so afterwards.....if I want to get any sleep at all.
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Old 07-14-2013, 01:19 PM #4
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I take Requip and it works well for me. There is no way I could ever sleep without it!
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Old 07-14-2013, 02:49 PM #5
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I took requip for years but am now on a new patch I replace every 24 hrs and no RLS symptoms since...one of the worst sxs I deal with...
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Old 07-15-2013, 12:24 AM #6
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I've taken Balcofen at 10mg per pill - says to take 1 every 3-4 hrs. I've taken even 20-30mg at a time and it doesn't help.
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Old 07-15-2013, 01:36 PM #7
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I was taking Pramipexole for period limb movement disorder (different than RLS, but same meds used, I think). It totally helped, but then I got edema and hives, the doc thought it was from than so I'm back to nothing. DH has a hard time sleeping next to me. I want to retry it to see if it's infact what caused the edema and hives, but I haven't gotten there yet.
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Old 07-15-2013, 07:01 PM #8
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I have a cure for some of you. Yes, I can say this with confidence because it worked for me for a quarter century or more, after a neuro suggested it.
I could not tolerate Baclofen or Zanaflex at all, so he suggested I get magnesium from the health store, any kind which gave the least diarrhea. 800 mg. at first. (Calcium is also needed but I was already taking it). Now it's 1000 mg a day in divided doses. As I have "progressed", I have needed more help, and E Complex and B1 have been added. Occasionally now I have breakthrough neuro symptoms in back and legs.

I too am not calling my problem Restless Legs. I think it should be called Myoclonus. It affects not only the legs but even more prominently the low back, which will jerk spasmodically if I don't take the magnesium. This is mostly at night. It only on very rare occasions occurs when I am awake and sitting up. It seems to get going when one relaxes. The whole leg up through the buttock will jerk. Also, if I didn't take the supplement, the feet would contort into very painful spasm, so it helps both of those.

It didn't cure me, I lied. But it stopped most of this for over 25 years. Whether that will continue I cannot say. Thanks to the neuro who knew about it. I forget his last name, his first name was James, at Scripps hospital years ago.
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Old 07-16-2013, 10:51 AM #9
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Oh, and then there is that bar of soap theory:
http://www.peoplespharmacy.com/2005/...oap-under-the/
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Old 07-16-2013, 11:54 AM #10
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I tried bar of soap but it did not work for me. Perhaps that is because I have Myoclonus rather than Restless Leg.
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