Consider yourself lucky, Erin..LOL!!

Apparently they debuted some new spicy chicken tender. Went over well, and they had a serious run on them. I just wanted plain ones. Not sure why they're completely out of all of them. Even the plain ones.

~grumble...complain complain complain...whine!~

<bunch of swearwords>

UTI's suck.

explains a few things tho.

Sorry Erin... Get better soon.

Erin - Sorry to hear about the UTI. I hope you feel better soon.

Today's whine . . .I don't whine or complain about having MS. I try to just go with the flow and have just gotten used to having MS. I don't usually get mad about it, but have my moments. Today, I'm having a big long moment. I don't focus on what it has taken away from me, just what it has changed in me and with me. There are positives to having MS and I remind myself of them often. Today, I feel trapped by it. I no longer have the ability to just get up and go like I did before. I only drive very short distances so I'm limited in where I can go independently. I know having the surgery has put me in a longer than usual flare, one that I can't take steroids for due to the risk of infection. I see progression. It's been slowly creeping in and when I look back to where I was shortly after being dx to where I am now, there is a big difference, mainly more fatigability, weakness, and gait trouble.

Today, I want to get out of my house and go do something. Go to the library, go visit DD's, go visit a friend of mine who is sick, go see my mom, go ANYWHERE! I took a walk around the complex and it helped, but the feeling is still there and on the brink of setting me off again. If I stiffle it, it will only come back with a vengance. Stiffling is never good. So, I decided to vent here instead of stiffling and hope that tomorrow I will be back to my accepting of MS self.

I hear you (((((Trish))))).

my boyfriend needs some cheese and whine.

He called me this afternoon to tell me about his "exciting day".

Seems he was on his way to work this afternoon, on his motorcycle, when a bicyclist rode out in front of him at an intersection. (boyfriend had the green light). He hit the bicycle's back tire with his motorcycle, and lost control. Ended up in a grassy median. Said he went over the handlebars.

Apparently just before he went over the handlebars, he put his foot down to try to stop himself. That's when his right ankle (fibula) broke. Then he was chest down on the median in the grass.

His bike is trashed. His ankle hurts a lot! The bicyclist got the ticket for running the light and causing the accident.

Anyone know who pays when a bicyclist is at fault in a car accident?

and for my request for cheese and whine.

my walking has been getting worse and worse. Tonight I was sitting outside with my parents. Probably a stupid thing to do, since it was 96F outside. I couldn't stand up. Then when I could stand up, I couldn't walk. I barely made it inside the house.

Then when I got into the house, I had to stop at every chair on my way to the stairs to get into the basement. I have an electric stairlift, but I needed my dad to come inside, and he just didn't get that I wanted him to turn the chair on the lift so that I could get onto it so I didn't go down the stairs ash over teakettle and hurt myself. I've been sitting down since I finally got down into my bedroom. I have no idea if I can stand back up now. Hope I can.

I feel really bad tonight. Little scared that my physiatrist that I'm going to see tomorrow is going to order a wheelchair for me. (I don't want one), and I'm also a bit scared that I'll end up in the hospital (and immediately go bankrupt because of the crappy insurance)

having a really really really bad week. I don't know how much more of this I can take.

You said,
"I feel really bad tonight. Little scared that my physiatrist that I'm going to see tomorrow is going to order a wheelchair for me. (I don't want one), and I'm also a bit scared that I'll end up in the hospital (and immediately go bankrupt because of the crappy insurance)

having a really really really bad week. I don't know how much more of this I can take."

I'm sorrry about your fall and boyfriend's accident. Hope you're both ok.

Do you use a cane or walker? Those are often prescribed before you need a chair, but a chair becomes a great friend and tool, when needed. Trust me.

If you are also on PLM, I wrote a (sort of) funny post called "How to know when you need a chair" It might help those who dread the idea of a chair.

Good luck, Erin, and let us know how it goes.

Karen
msbluis

I know you are young Erin but a wheel chair can give a person so much more freedom, stability, freedom to enjoy the outside world, it is limitless what it can give a person. And you just kind of learn to ignore the looks some people give you. I was really afraid, tentative, stubborn, you name it that was me. So I stopped going to the zoo, amusement parks, outings with my family. Then I decided I had had enough with this sitting at home pitying myself. My insurance got tired of renting me a wheelchair when my daughter was doing the whole college tour things so after about 4 times they just bought one for me. But when we go to a zoo, amusement park, etc, I feel it is worth the money to fork out a little money for my own independence and the comfort of my family to rent the mobility scooter. I have a basket, you keep the key with you, the seat swivels so you can sit at a table, you can let your grandchild fall asleep in your arms, I know bad girl. But it is so worth it. What gets me are the people who don't see you and they just dart right in front of you.

well, I didn't get a chair, but I did FINALLY get the Rx for the hand controls for the car.

He gave me a new Rx for spasticity. (no idea what it is. I can't remember the name of the drug).

He talked to me for a bit. Asked me what I do every day. I told him I don't do much because I don't drive, and my parents aren't all that mobile. So we sit around a lot all day. He kind of thought that if I got my hand controls, and had a little bit more ability to just get out of my freaking house, that I might start to feel better, and that might help me get moving around better. If I can get to a store, maybe I can go inside the store, and actually walk around. Do some shopping (or just walk around with a shopping cart).

He did say that the hospital he's at has a gym, and that they might be able to get me a "membership" to use the gym there. Or, I might be able to renew my membership to the gym that I used to go to. Said that I could use my walker to get into the gym and use their bikes.

Tomorrow I have to walk up and down the sidewalk in front of my house, at least once. Hope it's not hot out there tomorrow.


hey, while writing this, boyfriend called me. He'd called me earlier tonight, told me his big toe was numb, and it hurt like crazy. Asked if he should go back to the hospital. I told him that if he was questioning me if he should go to the hospital because his toe was numb and it hurt...that he probably should go.

He went back, and it turns out that his big toe was dislocated. (OWWWWWWWWWWWWWWWWWWW!!!!!!!)

They numbed him up, put it back in place, and sent him home. He says it feels so much better. He didn't sleep at all last night because of the pain. He gets his walking cast in the morning. He's excited that he might get to go to work tomorrow.

Now I'm happy that boyfriend isn't in pain anymore. He can sleep again, and go back to work. I'm excited that he's feeling better. Not surprised that he dislocated the toe. I can almost picture how he put his foot down, in the Fred Flintstone maneuver to try to stop the crash. Kind of hoping he can come into town next weekend to go car shopping with me.