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Old 12-02-2013, 06:12 PM #25
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TXBatman TXBatman is offline
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Join Date: May 2008
Location: Houston, TX
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Hi TJ, glad you are getting quick responses from your doc! One thing you might want to do if you have not already is to go read the McDonald Criteria for MS (http://en.wikipedia.org/wiki/McDonald_criteria).

When I had an episode of hearing loss and got an MRI, they found a couple of lesions. When I saw the neurologist, she told me that I didn't have enough lesions or the right kind of lesions for her to call it MS and ordered annual checkup visits with her and followup MRIs. After two years with no further symptoms or issues, I was pretty convinced that she had told me that what I had didn't look like MS. Then I got another MRI and there were more lesions. Suddenly she was telling me that now she could call it MS and started talking to me about starting on a disease modifying drug.

In hindsight and knowing what the McDonald Criteria are now, I can recognize that what she was doing was following that criteria, which required new lesions or new clinical symptoms separate from my original episode by at least 6 months. So when new lesions showed up 2 years later, it gave her what she needed to meet the criteria and justify the diagnosis. I am not saying your case is the same, but reading what the criteria are might help you better understand what the doctor is telling you so that you hopefully aren't taken by surprise the way I was.
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ANNagain (12-02-2013), Debbie D (12-03-2013), Erika (12-02-2013), SallyC (12-02-2013), tkrik (12-02-2013)
 


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