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Old 01-27-2008, 03:14 PM #11
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Aw, Renee. So sorry you're going through this. I wish you good luck and better health with whatever you decide.
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Old 01-27-2008, 03:27 PM #12
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Quote:
Originally Posted by afwifeRM View Post
Thought I would pose this question as I am sure I am not the only one who has gone thru this..............

I am currently on Rebif,have been for over a year, the past few months I seem to run a fever (low grade) like 99.8 ALL the time, and on shot nights it goes up to over 101. yes I do premedicate,and medicate during the night and next day! MS lifelines nurse did not feel this was associated with the rebif....My neuro and I have discussed me going off and either trying Tysabri or Copaxone. I also get horribly achy with the rebif, again even though I medicate. neuro thinks maybe effects aren't wearing off from one shot to the next. All I know is I feel horrible most of the time with Sundays being my best day as I do my shots on MWF. I might also add that I dodthem at bedtime.

my point is this...I am thinking about just stopping for awhile and seeing if I don't feel alot better. Anyone else go thru this?
I don't take Rebif, but do take another interferon...Betaseron. I stopped for the week before my colonoscopy because I figured I'd need the energy just to prep for that. Guess what? I started feeling better NOT using that stupid interferon drug!

Why do we have to feel so crummy IN THE HOPES THAT IT WILL DO SOMETHING?
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Old 01-27-2008, 05:37 PM #13
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Hi Renee, I am one of those 'interferon intolerant' mser's. I was Avonex for 9 really bad weeks. I never stopped having the flu-like symptoms. Fever, worse than my usual exhaustion, my right eye nearly swelled shut. My dh finally looked at me one day and said enough is enough. It got to the point where I felt like I was poisoning myself when it was injection time. I can't use Copaxone because of severe site reactions. I'm happy to say that I will be starting Ty within the next week or two. My last Avonex shot was on Thanksgiving day, so I'm well passed the washout time. I did fall into a relapse even before I went off of the Avonex and I'm still dealing with that. I'm just looking at this as a new and hopefully better way to deal with this crazy disease. Good luck and I hope you feel better off of the interferon, if that's what you really want to do.
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Old 01-27-2008, 05:40 PM #14
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Quote:
Originally Posted by SallyC View Post
I think you'd have to stop Rebif for awhile anyway, before they would let you start Tysabri.
Two weeks washout before you can start Tysabri.

I didn't see Mary's post before I posted this!

I hope you feel better soon Renee!!!
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Old 01-27-2008, 06:26 PM #15
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Hi Renee

Sorry to hear how terrible you are feeling.

Hope things start getting better for you real soon, and whatever
you decide to do about the meds is the right one for you.


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Old 01-27-2008, 06:29 PM #16
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Thanks guys for such kind responses, Mary is right it has been a very rough past two years and I am leaning towards the Tysabri just because of alot of the positive responses it has recieved in trials,that and I don't want a shot everyday! I am having alot of problems today no doubt because of the hi temps from the flu,vertigo,spasms,the lovely HUG, and both my eyes are so painful it isn't funny...thus why I haven't been on here today!

I know we all have a chronic illness,but dang it I'm ready to start feeling good!!

MY MS GOAL.......to be able to borrow Mary's red high heels!!
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Old 01-27-2008, 09:23 PM #17
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I have been taking Rebif for over 5 years. I need to take Tylenol or whatever when I inject or I still will run a fever. I inject in the evening. In the morning, I need to take more because I still have a low temp. I inject MWF and Saturday mornings are the worst days for me.

I am building my case to get off of this drug. (Whining...I want off.....)

So....for you, will it hurt if you stop for awhile, a few days say and see how you feel? IMHO, I don't think it would hurt at all. It will just give you more info to tell the Dr.
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