[Erin524]

I've got to stop reading posts about spasticity, because I'm wondering if the reading about it is making me have a LOT of spasticity this week...either that, or the tumble down the stairs I had a week and a half ago is causing this.

I'm really really really really really sore.

I have spasticity in:

the left side of my ribs.
both legs, but the area around where I hurt my knee last week is more sore than I think it should be...so either it's the spazzing, or I did more damage than I thought to my knee.
both shoulders. Left is worse than the right.
my feet. Plus my feet feel cold.
and, the back of my right leg, from just below the butt, to just above the knee.

and, I've got a bit of a migraine (probably not spasticity related, but still, it's annoying.)


I know this is a bit counter-intuitive, because of the heat-makes-symptoms-worse thing, but putting a heating pad on some spots seems to help...maybe temporarily, but at least the heat is letting some of the pain leave me alone for a bit.

So, just in case reading about spasticity is causing this, I'm firing back with my own whine about it to share the "love". (I'm only teasing about that...I'm just a bit annoyed with being so sore, hopefully my whine wont trigger someone else to be sore)


I think this is the first time I've had this much pain. I'm pretty sure it's all spasticity with a little soreness from my fall thrown in for "fun". Because most of the pain feels just like The Hug pain that I've mostly felt before.

I took a whole baclofen about an hour ago. (usually I break it up into pieces) and it hasnt helped much. I'll probably take a half a pill before I go to bed (which will be soon)

If I can get an appointment tomorrow, I'm going to go see my regular doctor, since I'm worried the right leg pain might be some sort of ligament damage from my fall, and that it's triggering some spasticity or something.

geeze, MS sucks more and more all the time, doesnt it?

[CayoKay]

Originally Posted by Erin524

geeze, MS sucks more and more all the time, doesnt it?

yep, it does.

[Judy2]

Hi Erin!

Your subject of PAIN caught my attention....big time! I hope you're able to see your doctor to make sure you didn't mess up your knee or anything else. Kind of sounds like the pain I have 24/7 with fibromyalgia, but I really, really hope it isn't. Sometimes an "episode" like a fall, etc., seems to set it off. It is pain in the muscles, tendons, ligaments and connective tissue. Nothing seems to help mine very much except plain old Aleve (2). Mine started about 12--13 years ago when I was on Avonex.

Think the nurse hit a nerve with an injection and that's when the literal pain in the butt started and has progressed throughout my entire body over time. Yes, I do have lots of spasticity in my legs and back, but that's a different kind of pain -- more like when you stretch too far. MS sure is the pits!!!

Take care........

[Judy2]

It's me again Erin. I forgot to mention that I like your Avatar! Is that your dog? Looks like one of the BIG ones -- wolfhound, deerhound????? Watching dog shows on TV, I'm amazed at the size of some of our four-legged friends. I had a Bichon Frise who passed this past October at 15-1/2. She was the light of my life and things just haven't been the same since. Okay.....blab....blab....blab......

[Jodylee]

Originally Posted by CayoKay

yep, it does.

It most certainly sucks. I really hope your doctor can help you. The 'love' is still coming at you LOL.

[Riverwild]

Jeez Erin! It's like you just can't catch a break, isn't it??!! After that horrible fall and now this...

I'd do the baclofen, and do the whole pill this time! If that doesn't help, call the doc. You might be able to get a different scrip for the pain, but the baclofen will do the trick if it is spasticity.

What amount of baclofen are you prescribed a day? I am on three times a day, although there are many days when I don't take them all. When I am spazzing, I am on them as prescribed or better, as in every six hours or so.

Hope you feel better soon! Let us know how it goes!

[Erin524]

Originally Posted by Judy

It's me again Erin. I forgot to mention that I like your Avatar! Is that your dog? Looks like one of the BIG ones -- wolfhound, deerhound????? Watching dog shows on TV, I'm amazed at the size of some of our four-legged friends. I had a Bichon Frise who passed this past October at 15-1/2. She was the light of my life and things just haven't been the same since. Okay.....blab....blab....blab......

Yes, that was my dog. He died in March of 2006. (he was nine) His name was TinyMonsters.

He's a Bouvier des Flandres. They're bred to use as cattle dogs/sheep herding dogs in Belgium. They're also used/were used as milk cart dogs and in WWI and WWII they were messenger dogs and ambulance dogs for the Allies. (helped find wounded and dead soldiers)

The Germans had a standing order to shoot the dogs on sight in WWI. Nearly wiped out the breed. The breed was starting to come back in WWII, and then Hitler decided he wanted a "Master Race" of dogs. Bouviers were one of the breeds he looked at. The day he was shown the Bouvier was not a good day for the breed. Hitler was looking at the dog they brought him, and he was impressed...until he reached his hand out to pet the dog, and the dog bit him in the hand! (good dog!) Hitler put out a standing order to shoot Bouviers on sight again.

The breed survived both wars, and some were brought to the States. They're still not a very popular breed (which is good, they dont get over bred that way) I think it's one of the most perfect breeds of dog. I really loved mine.

My parents (I live at home) and I have been talking about getting another dog. I have to make sure that I'm not allergic to dogs (we tried to get a Yorkie Terrier a week after Tiny died. I had a bad allergic reaction to him and we returned the dog)

I'm thinking about getting a large Poodle. I like the idea of large dogs. My first two dogs were small. (a Yorkie and a minature Poodle) TinyMonsters was my first large dog, and I found out that I like the big guys the best. My poodle was a great watch dog, and was pretty smart, so I'm going to look for a larger poodle.

I think I'd love to get another Bouvier, but they're fairly rare here in Omaha, and Tiny's breeder hasnt bred her dogs for a few years (she only breeds them when she thinks she can better the breed) I dont really want to travel to go get another dog.

I am thinking of getting a Pug instead tho...my aunt has a Pug (Pudge, she was Tiny's best friend) and I just love Pugs as much as I love Bouviers.

With my mom not being very strong, we really should get a smaller dog (Tiny had pulled her down once when he was on lead, and my mom ended up with cracked ribs and sprained shoulder) I'd love to get a large Poodle, but the whole thing about it being able to pull my mom down is probably going to be what keeps me from doing that. My mom does not have the best judgement when it came to taking Tiny outside on a leash. We wouldnt let her.

If we get a little dog, I wont have to worry about her getting knocked down. I'll just have to worry about the dog getting run over because she didnt put a leash on it. (our yard isnt fenced) The other plus about getting a little dog is that my mom will be able to help take care of the dog. It wont just be me taking care of it this time. (Tiny was a one person dog, and I was his person. I couldnt leave the house sometimes because he'd miss me that much if I was gone for more than 5 hours)

[Erin524]

Originally Posted by Riverwild

Jeez Erin! It's like you just can't catch a break, isn't it??!! After that horrible fall and now this...

I'd do the baclofen, and do the whole pill this time! If that doesn't help, call the doc. You might be able to get a different scrip for the pain, but the baclofen will do the trick if it is spasticity.

What amount of baclofen are you prescribed a day? I am on three times a day, although there are many days when I don't take them all. When I am spazzing, I am on them as prescribed or better, as in every six hours or so.

Hope you feel better soon! Let us know how it goes!

I ended up taking 1 and a half Baclofen last night. (took the half after I posted last night) and then I took 600mg of Ibuprofen. When I woke up this morning, the only part of me that was still sore was my right leg and my lower back. So, I think most of the pain last night was spasticity, and it was making the sore leg more sore. I could tell that the Baclofen helped a LOT.

I was Rx the Baclofen in November, and the bottle says that I should be taking one pill (10mg) twice a day. I dont use it that often because it knocks me out. I take it at night when I need it...which hasnt been all that often.

Last night was the worst night for me in the spasticity department. I was so sore last night! It seems like the spasticity leaves me alone for most of the day, and it likes to start picking on me in the late evening.

I was going to go to my regular doctor today for the sore knee, but I woke up to a blizzard this morning, and the Omaha PD is saying stay off the roads unless you have to. So, I'm going to wait till the storm is over tomorrow to go talk to my doctor about the sore knee/leg.

I wish it wasnt snowing. Right now I'd love a Quizno's sandwich and their sea salt and malt vinegar potato chips. I'm starving! I might just have to venture out into the snowy tundra to get a sandwich. (and to get my mom a bread bowl of soup)

My dad should be home in a bit...maybe he'll go with me (someone has to hold the sandwiches and keep the soup from sloshing)

[DM]

Hey Erin~ Sorry you are feeling so yucko! I hope you can get some relief from the Dr. I'll cross my fingers for ya. Take care.....

[Erin524]

My right leg (the one I fell on) is sore again today, but all the pain I felt last night from what I'm assuming was spasticity isnt bugging me right now.

It's weird. I thought spasticity would be an all-the-time thing, but it seems to change about as often as the weather does here. I still have some weird pain in my ribcage (that started up a few hours ago again) At least most of the other pain doesnt seem to be bugging me yet today.

I'm going to the doctor tomorrow or the next day (depending on how much longer it's going to snow) and see if he can figure out if I did more damage than was thought to my right leg when I fell down the stairs. When I fell, I felt my tibia hit the femur where they meet at the knee (I think those are the names of the bones) and that's where most of the sore-ness is coming from...I might ask for an x-ray to see if I cracked or chipped something there. (I dont want anything torn there...ligament and tendon tears take forever to heal...I'd rather have a broken bone)

When I go to my neuro in 3 months, I'm going to have him do the EMG he suggested on my arms...see if my carpal tunnel syndrome is back. My hands hurt at night, and they go numb while I'm sleeping, both of which are symptoms of CTS and it feels just like it did when I had surgery on one of my arms in the early 90's. I want to make sure it's the carpal tunnel, and not some funky MS thing going on.