Whoa, Julie.

Ok, now let's see if I can get this out coherently

YES, you can have "nerve pain issues" (neuropathy) that don't (doesn't) show on EMGs and probably lots of folks here on this board are in that position.

EMGs are done to check for electrical impulses produced in your muscles and you probably had a Nerve Conduction Test (nasty little needles and shocks)
along with it which measures how quickly messages are carried by your nerves, i.e. to check for Carpal Tunnel Syndrome.

Both of these can be perfectly normal and the person can still have a multitude of neuropathies stemming FROM WITHIN the brain and/orspinal cord rather than from nerves going TO or FROM the brain or spinal cord.

Is it possible the Doc said you didn't have Peripheral Neuropathy? That would fit better.

If you are numb, it makes sense there's no pain when going.

Get checked . . . I ignored the full bladder feeling until I went into a full blown paralysis attack from a UTI !!

Cherie

Agreed! Get it checked, please.

I NEVER have pain with urination when I have UTIs, they used to be caught only incidentally to other hospitalizations for my 5-8 week long whatever those episodes were.

ITA, get checked. Better safe than sorry.

BTW, I found that I was spending a lot of time on the message boards when I didn't really think that I had "time" to keep a sx journal. Turns out that when I was on the message boards all I had to do was open Word and type out my sx for the day. Bam! Easy. Done. And MULTITASKING--a mom's best friend (especially with as many little rug rats as you have).

Here's what he wrote at the bottom of the test:

Diagnosis:
729.1-fibromyalgia
782.00-paresthesia

Comments:
Her SX are very nonspecific. There are no real objective deficit suggesting a significant central or peripheral nerve system disease. Apparently she has been told that she had neuropathy in the past though the EMG and nerve conduction study today does not reveal any sign of the nerve, root, or plexus lesion. It is possible her SX are related to fibro. Ruling out organic cause would be appropriate.



He did 2 test, that needle shock thing and the metal thing they put on you and shock you over and over again in the same place.

Well, the nice thing about that is that he says you have fibro and acknowledges that. He also does not say that you have a strong non-organic component, which means that while he can't put a finger on it, he doesn't think you're totally nuts and creating the sx. Ruling out organic causes is nice. He wants to make sure that other things aren' causing whatever it is that ails ya.

It's my same beef with two neurologists looking at MRIs and seeing different things. He's not seeing what the other neuro did and/or he's discounting that based on what he found himself.

All's not horrible with this. Unfortunately, it doesn't say exactly WHAT it is that is causing everything for you.

Yet another non-specific answer to a problem. Life's full of 'em. Too bad we can't write up non-specific reports on the docs.

OK, what does organic mean in this case?

I still have this going on, I have been thinking about how else to describe the feeling of the pain. It's a little like pins and needles and tingling pain. Not like when you sit on your leg funny and your foot falls asleep and tingles, more like a needle poking you tingle. The tingling last about 4-5 seconds in each spot, from head to toe the whole thing last 15-20 seconds total. It's hard to describe an odd pain that rolls down your whole body like a wave.

I have been getting this for some time but it never happened over and over again and most of the time it would only happen in one spot (like just part of one arm or just one hip).