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Old 04-14-2008, 12:22 AM #20
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Riverwild Riverwild is offline
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
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Quote:
Originally Posted by lady_express_44 View Post
One symptom of spasticity is spasms, but not everyone with spasticity has a hard time with the "charlie horse-type" spasms. I have a few times, but the spasticity pain symptoms I've experienced most often are usually quite different then that.

For me, the spasticity usually gets both limbs (arms &/or legs) at the same time, and can feel like:

- a dull ache, like a tooth ache
- the meat being pulled off my bones
- "cold to the bones" ache sensation (very painful)
- like my tendons are being taxed to the max (very painful)
- muscle stiffness
- small little twitches (spasms) under the skin, but don't hurt

I don't do much exercises when I am in the midst of an attack (that usually includes severe spasticity), but I do a lot of stretching exercises when I am not. I have often worn braces at night when it is really bad, so that I don't contort my limbs in weird ways. Antidepressants can help somewhat, but LDN has been my ticket to almost complete relief from this symptom.

Cherie
Thanks for this Cherie!

While I posted about the "near charley horse" thing, I also have the muscle stiffness, those flickering small twitches under the skin, and that never ending tendon thing!! I tend to blow some things off, but the stiffness from spasticity is one of my MAJOR problems these days! I walk funny, I can't bend down because my legs are straight stiff, I can't even tie my own shoes sometimes cause my legs won't bend enough for me to get my feet anywhere near my hands!!
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diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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