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#111 | |||
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In Remembrance
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I would like it on record, that I never ever questioned Lauren on her choice of DMD, only her "facts" posts.
I am so happy that Tysabri seems to be helping Lauren and for all of you, it is helping. That has always been my wish for you in spite of all the misinfo, about Tysabri that has floated around out there. Some may say that Tysabri advocates such as Lauren, take the opposite approach and want only the PRO news to be known and none of the Cons. ![]() Thank you for posting, Lauren and I hope you will continue to do so and to enjoy all the great features of Neurotalk. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#112 | ||
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Member
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Quote:
Hi Lauren, If I'm not mistaken, you're from that "other" MS board??!! Welcome to NT. Did I read this right? Have you had 19 infusions??? Glad to hear things are going well for you.
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~Victorya~ ------------------------------------------ Spring 2002/present - Double Vision Feb./Dec. 2004 - Optic Neuritis Dec. 17,2004 - Diagnosed RRMS Feb. 9, 2005 - First Rebif injection Mar. 7, 2006 - "Copaxonator" ------------------------------------------ |
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#113 | |||
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Junior Member
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Thank you everyone. I just finished my 19th Tysabri infusion and everything went fine. Even had my blood drawn afterwards to check my liver function enzymes which I have done every six months pursuant to my neurologist's instructions. I even have a six-month follow-up appointment with my neurologist tomorrow.
One of the infusion nurses at my infusion site mentioned to me that her sister is being tested for MS, and so far, it's looking like she's going to receive a confirmed diagnosis of MS very soon. She asked me many questions about Tysabri, and I gave her whatever information I had, as well as my opinions about Tysabri, and suggested that her sister discuss Tysabri with her neurologist. It is dinnertime here, and I'm getting ready to have my regular treats: pizza and mudslides, then I'm off to bed after I do my physical therapy exercises. Life is good..., Hope everyone is well, and stays well. All my best, Lauren PS: Victoria, I post on many different MS sites/forums, not just one other.
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Our todays are only stepping stones for our tomorrows. : Please feel free to visit my blog: Living with MS (My Tysabri Diary) . I'd love to hear from you! . |
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#114 | |||
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Magnate
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Glad to hear # 19 went just fine! Have a mudslide on me and come on up to the Tysabri thread here under stickies and add your information! ![]() Nancy
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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#115 | |||
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Member
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Hi Lauren, I'm so glad everything went well for you today. I knew it would! Mine went great yest with really no sides to speak of. Having a few problems, but thank God they started before the infusion so noone can blame TY. I love this drug. Thank You for everything ~Sheena~
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#116 | ||
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Junior Member
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Woowzaaaa!!!!!
I just read all of this Old Tysabri Stuff - Whatever works let's rejoice ![]() I just had #19 yesterday and cannot say enough Good Stuff about Tysabri For Me and my MeSs - Again - For Me!!!!! It has brought to me a New Life - A long time ago I had 1 infusion Feb 15 05 & I think it was the next day it was pulled from the market. At that point I had just turned 47 & had a whole life ahead of me. I had a New relationship & I was trying to live life as well as I could with a crap disease. I was and still not as disabled as some but I want My Life to be My Choice. I am still Not afraid of PML or whatever my come my way. I have had a wonderful Love Life that I would have missed out on had I not chose to take a risk on Ty ![]() MeSs is just a part of my Life these Days. It is Not who I am but it is a part of me - You all can argue all day long while I am out traveling, enjoying life, Having Great Sex ![]() I recently had a 3 tesla MRI of brain & spine and I have No New Lesions and everything Looks Great ![]() ![]() I belong to a wonderful Ladies group. We have Lunch every other month. I also belong to a beading club. I play Bunco once a month and I'm going to 7 Feathers Casino next week. I went to a wine dinner a few weeks ago & had a Blast. I take cooking classes although I still hate to cook. My Honey is taking me to Santa Rosa for Vacation in May. We are going Salt Lake City in June. Just went back to the Bay Area to visit my son in Feb. I hosted Christmas at my home and enjoyed the Holidays with my Lovely Family. There are more plans but not enough time to list all.......Sometimes I am too busy to do it all But the fact is that I am doing this stuff that 2 years ago were just good ideas but not really a reality in my Life. I have a Life these Days that I was missing out on 2 years ago. Thanks to Tysabri I can enjoy these days...........Oh Yah - We have tickets to several concerts for this summer!!! I get front row seats since I am disabled. One of the perks - Parking and front row seats - Yipeeee for me!!! I'm not saying Everyone should change their meds - Not at all - It's about having a CHOICE - My Choice!!!!! Life is So Good these Days.......... Best Wishes to All DD~
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"If you think you can or you think you can't, you are right either way. |
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"Thanks for this!" says: | SallyC (04-01-2008) |
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