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With pain being such a prominent thing for me and being diagnosed with fibromyalgia in addition to the now SPMS, I was wondering if anyone had been diagnosed with or knows of Central Pain Syndrome??? From what I've found, it's a difficult, if not impossible condition to treat. My neuro hasn't mentioned this, but he isn't a MS Specialist, The nerve pain is continuous 24/7. It either starts in my feet or "butt" and radiates up through my entire body to the shoulders and down my arms. Some of it goes to my head also. The pain kind of throbs and comes in "waves" feeling like every nerve is on fire. At times it's almost unbearable and I just have to cry being it's so severe.
![]() Of course I'm in this lousy powerchair most of the time, can't soak in a nice bath, move much from the waist down, so it really limits activity. Was hoping maybe I missed something along the way and that magic pain pill is out there! Well, today my car was finally picked up and is now on it's way to Maryland. Had a brief "twinge" of sadness, but I'm over it now. Just another thing this lovely disease has taken away. Maybe a handicap accessible van in the future??? We'll see. Took a couple pictures of it riding off into the sunset!! LOL Thank you all for listening/reading. It helps!
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_____________________________________________ .....Judy SPMS -- FIBROMYALGIA -- Ouch! and Ouch! . |
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"Thanks for this!" says: | AfterMyNap (06-28-2008), Dejibo (06-29-2008), Jappy (06-28-2008), MSacorn (06-29-2008), Riverwild (06-28-2008), SallyC (06-28-2008), weegot5kiz (06-29-2008) |
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