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Old 10-03-2008, 01:27 PM #11
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Quote:
Originally Posted by soxmom View Post
I hope the neuros plan helps Holly. Im going thru something similar
right now. I was playing a new game with my 10 and 5 yr old yesterday
and was trying to read the directions to figure out how to play and
I was so confused. Finally with some help from my dd, we figured it
out but sheeesh.

I hope things improve.
Ugh reading directions! That has been hard for me lately, too. Maybe you should talk to your neuro, too!
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Old 10-03-2008, 03:34 PM #12
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Holly, things did get a bit better with me after my really horrible cog problems in 2003. So there is hope.

I'll keep my fingers crossed for you with the neuropsych testing. I know how frustrated you must feel right now. It's a real #^@#! to handle. Hang in there though. The neuropsych, if you ARE slipping, should have some good suggestions for you on how to compensate--maybe things you haven't tried too.

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Old 10-03-2008, 08:49 PM #13
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Holly,

I finally figured out that my cognitive problems almost always were linked to not sleeping enough. It is a simple thing to check....

If the alarm has to wake you everyday, then you aren't sleeping enough. Your body will wake itself when you have had enough!

And I, like Gazelle, have come back to pre problem cognitive powers! So don't give up!

Puzzles, games (join us on Lighter Side here)....studying with kids...reviewing simple math facts....playing board games like Memory....
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Old 10-04-2008, 09:19 PM #14
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I have the same problem with the cognitive stuff. I am a teacher and the year has just started and I feel overwhelmed already. It's so hard to multi-task and keep track of stuff.

I was hoping for IVSM but the neuro's PA wanted me to wait and try Tysabri on Monday, my first infusion.

I am in a horrible depression and my psych RN just increased my Wellbutrin XL and my Xanax and then I am back to see him in two weeks. I am a complete mess. I am exhausted, lucky if I eat once a day, could sleep forever, and have no desire to do anything.

My cog fog mistakes are daily and hard with me being a teacher. I'm just plain worn out.

Good luck,
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Old 10-04-2008, 10:13 PM #15
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YESS in fact it has been my most serious symptom and the one that scared me the most cuz I thought I could not longer work.

Sense of direction.. went kapoots

Speech.. saying the wrong word.. slurring..stuttering..

WRiting the WRONG numbers at work.. and not even knowing I did it.

Balance.. then weakness.

Well.. I had a short oral prednisone stint and improved..but..when i went to my guru of a nutritionist.. he FED my brain with much lacking nutrients.. and detoxed my toxic brain/body.

ANd know what? I have had little to no more cog symptoms !!!

YOUR BRAIN NEEDS NUTRIENTS>>>WHOLE foods especially designed for YOUR brain.

These specialists can test etc but not necessarily CORRECT...

OH well.. I am glad I am better.. 2 years plus now

Jan
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Old 10-06-2008, 07:23 AM #16
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Thanks everyone. I'm just too tired to even really respond right now. Maybe it is a flare. I just want to crawl back into bed.
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Dx: CNS Demyelinating Disease (2005)

Take me back to days full of monkeyshines
Bouncin' on a bubble full of trouble in the summer sun
Keep your raft from the riverboat
Fiction over fact always has my vote
And wrinkles only go where the smiles have been...

Jimmy Buffett from "Barefoot Children in the Rain"


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