Erin you could call/email Dr Skip Lenz, the pharmacist in Florida who does a lot of compounding of LDN and ask what doctors in your area are prescribing it.

PM me if you have a problem. I have his site info and others.

My PCP prescribes it for me, I fax it to Dr Skip. My Neuro called my PCP and said it was okay for him to do so.

My regular doctor and my neuro both will NOT Rx it for me.

However, yesterday when I saw my regular doctor, he "suggested" that I look on the internet. Said to look and see if there are any trials, and then he said look around and see if someone can Rx it to me over the phone with a consult. Told me I'd have to send medical records to the Rx-ing doctors probably... (I already knew that, but let him tell me anyways)

So, he basically told me I could take it, I just cant get it from him.

I just have to pick a doctor off the lists of LDN prescribers that I've found on the internet, and hope they're not scam artists. One of the reasons I was hoping someone here could suggest someone.

I just feel so horrible this past couple of months that I'm getting a little desperate and a lot depressed that I'm about to be disabled. I feel a little worse almost every day it seems.

I think the depression is coming from the fact that the numbness and weakness has finally hit my arms and I cant really knit or crochet any more. (well, I can, but it's a lot more difficult than it was and isnt as pretty anymore)

My neck hurts really bad tonight and I'm scared that's the lesion at C4 and that it's about to ruin my life totally.

I really hope that LDN will help me feel at least a little bit better if I can get a Rx for it.

Called Skip's pharmacy. They only had the email addy to someone who I've already gotten information from.

I just went thru the list of doctors in that email. One was closed today. Another one I couldnt get thru to. Kept getting an "all circuits are busy" message.

Another number was no longer in service.

Finally got thru to a doctor in Houston, TX and they're going to email me a new patient form. I have to see what info they're asking for before I decide if I'm going to actually set up the phone consult with them. (bit worried about sending info to someone for this, afraid of getting identity stolen.)

Erin I got lucky having someone here suggest a Dr that prescribes it but even still, when I went there I was armed with select pages printed from LDN website, read them waiting so I could talk the talk, printed whatever else I found from users praising it posibly here. The best part - when I had long appt with my med Dr, he told me he gave it to someone that requested it for rhumitoid arthritis (doesnt think its working for her) so I was like darn! I couldve asked him! heh. However, it wasnt the magic bullet for me (or not yet anyway). I' refilled it and will give it another try one of these days but I'd like to know...

How many people here have great results using it and what else are you on??
Thanks.

btw..Erin and everyone else wanting it could sure use a list of people that take and love it.

No MS med in existance gives great results.

I am satisfied and even happy with LDN. Why? Because it helps to minimize all of my MS sx, seems to be slowing my disability progression and, unlike the poison DMDs, helps me to feel better, healthier and happier.

I have been on it since April, 2003 and The only other med I take every day is Prozac.
So, if you are looking for a myracle drug or cure, forget LDN and all other DMDs. There aren't any.

Sally's right. LDN works differently for everyone. Some get great results quickly. Others have to be on it for a while before noticing any improvement. Others don't get any benefit from it.

I'm one of the fortunate ones. It's helped me tremendously. It's not a cure. But it minimizes the sx I do have and I believe it's slowed the progression of my MS. I feel so much better than I ever did on the traditional DMD's. No flu like symptoms. No site reactions. And no ridiculously high price tag!

I'd hate to think where I'd be if I hadn't found LDN nearly two years ago. I still have MS symptoms, but I am much better than I was before I started LDN, and I am sure I'd be much worse off without it.

I know that because two times I had to come off of LDN before surgery, because I might have needed heavy-duty pain meds after the operation. During the time I was off LDN I was reminded daily of the improvement I enjoy with LDN. As a result, I opted to take no strong pain meds in favor of restarting my LDN.

And it's not just that I am feeling better. Knowing that I now have some stamina, over the past two years I have started my own Etsy shop, and I’ve grown leaps and bounds in my trade. I don’t feel quite so aimless, and I do associate my feeling better with LDN.

I'll give it another go since Ty i'snt stopping progression. So 12 at night is the soonest to take it? If i have to wake up at 2 or 4 to take it it'll harm me. Ive read where Prozac helped some with MS. Wonder if the combo is key. And 3mg is what yields results?

I think between ldn and ampyra i'm going to be too wired to sleep.

Eddie, I take 5 mg. around 11 at night. It took me awhile to titrate up to that amount -- 2-3 months.

I feel clarity of thought and more stamina taking it. I just ordered another 185 doses, and don't plan on stopping.

Skip Lenz, the pharmacist, told me he takes it prophylactically. He is sold on its benefits.

Best of luck to you, Eddie.

LDN has helped me too. Many improvements, even old residual damage is gone. Can the other drugs do that? I don't think so. No progression, and I was progressing prior to LDN. I am taking 3.0 mg at bedtime, with a glass of water. I wish I had a set bedtime but I don't, so I take it about 1/2 hours before shutting my baby pale greens. Lol

I may go to bed at 1, 2 or 3 am. Just take it before going to sleep, no later than 3 am is okay Skip said to me, but that is the time I told him I may go to bed if I nap during the day. I never asked about 4 or 5 am. But I think we make our endorphins around 3 am, but we are all different.

I don't take Prozac or any anti-D's. I never needed them. But I'm sure it won't hurt you if your body needs them. LDN lifts my mood a lot.

If life is harder on you, or you're missing, or low, on a chemical in the brain that's helps you avoid the high and low's of the day, or stressful situations, then anti-D's is the way to go.

Eddie, if you moods are steady, and you never feel that dark cloud over your head, or you can see the light at the end of the tunnel on a bad day, then maybe you do not need the chemical booster of anti-D's.

No two people are alike in this world, and the same with MS and other diseases. We try meds and pray they work for us.