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Old 03-06-2009, 04:03 PM #9
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Join Date: Jan 2008
Location: Vermont
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Blessings2You Blessings2You is offline
Elder
Blessings2You's Avatar
 
Join Date: Jan 2008
Location: Vermont
Posts: 6,726
15 yr Member
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Random responses from my random brain:

Niko: "Do what you can do when you can do it (and remember it)" -- good motto! Thank you!

Sally: I hear you about "accepting it" but not being "okay with it". Not being able to "be there" is one of the hardest things for me, too. It’s not okay.

Kami: I often leave the drugstore off the list! If I can find the two or three "drugstore" items I need at the grocery store, why make a second stop to save maybe $2 and use up a quart of energy?

Kitty: I like your attitude. That's how I think on my good days.

Erin: Sitting outside sounds good--except for the ice and snow. I'll wait a few weeks!

Karousel: "...make changes as best I can." That sounds like good advice, also, even though Ma and Pa have a hard time with change. I should just sit down and say, "Now, what can I change?"

AMN: Hmmm. Do it anyway, even if I never "get past it". Sage advice, as always. Especially the part about "then take a nap".

Debbie: Some days I have that fight in me, some days I throw the fight and try to regroup for the next day. Good for you.

Bird: Haha, no there's no one else who can do the shopping! I'm laughing picturing Bob (who doesn't drive now) walking into a grocery store by himself!

Actually, it isn't really shopping that’s the issue, it’s the concept of one more thing on my list of activities that only takes an hour or two but sucks up the whole day's worth of spoons.

I'm learning a lot from all of your input. My ultimate goal is to (like the Apostle Paul) learn to be content whatever state I'm in. I don't mean "content" as in "give up" and let this terrorist disease win. I mean find a good balance: be realistic but not fatalistic, not give in but recognize my limitations. Discontent that keeps me plugging along is a good thing; discontent as opposed to inner peace just makes my symptoms worse and rots my mood.

Maybe I’m trying too hard to “get past it”; maybe that’s not a good goal. Maybe I just think too much. I like hearing all of your coping skills, and plucking out what might work for me!
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**My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26)
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Kitty (03-06-2009), Niko (03-07-2009)
 


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