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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#7 | ||
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Grand Magnate
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JCPA, My opinion is that you need to talk to your doctor before you make any changes to meds!!!!
I've only had experience with steroids, not Imuran or Cellcept. If you can find a primary doc who is kind and intelligent, they can LEARN about MG. I would rather have a really terrific primary doc, willing to learn, than a know-it-all who won't listen. ![]() Cellcept takes awhile to kick in. Give it a chance. Maybe that and the thymectomy will help. Yeah, most definitely you probably got sick due to being immunosuppressed. Sometimes, they can't tell by looking at your white count if you have an infection. I've found that the erythrocyte sedimentation rate, although not a specific test for anything, often reflects an infection going on. When I had clostridium difficile, an infection of the GI tract, my sed rate was 104. My white count was completely normal. Normal ESR is about 20 for women. Just talk to your docs. And take it easy. Wash the hands. Carry Purell around. And so on. Annie |
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