Hi everyone. I think I posted here several years ago. Well, I am still sick. I just got back from Mayo clinic. I had an EMG and nerve conduction test but they were negative. The neruo ran the blood test for MG and I'm waiting for those results. I have been tested for it in the past, but those tests were negative.

Here are my symptoms: I have weakness in my arms and legs. I am almost unable to pull myself up in the tub. I have trouble with stairs; by the time I get to the top I'm so weak and out of breath. I do have pain which I think confuses the doctors. I cannot walk long distances anymore and I use a wheelchair at times. I have trouble hanging up clothes, folding laundry, shampooing my hair; anything that requires repetitive movements causes my muscles to get weak and burn. Over the past six months I've started to have trouble with eating. Especially with chewy food. For example, eating a piece of pizza wears me out, my mouth gets so weak, starts to hurt and I just get plain worn out. Usually, I need to go get in bed, sometimes I end up taking a nap. All from eating! Another symptom I have is with my breathing. If I've been talking for a long time I will get short of breath, I'm not even sure if it's truly being short of breath or I'm just having trouble breathing period. If I rest, my breathing will return to normal. I have a droppy eyelid and have eye muscle weakness (although I've had the muscle weakness since birth I believe). My neuro from here at home noted that I had coarse facial features? I'm not sure what that means. But, I have noticed my whole face sagging more. I'm 48, but it happened just recently.

The neruo at Mayo seemed to think some of my problems were due to a probable case of myelitis I had six years ago. I do have neuropathy left over from that. Anyway, is there anything I can do if my tests come back negative? Are there any neuros that specialize in MG? I'm in Indiana and I'll travel if necessary. Is it even worth me trying to see one? I mean does this sound like it could possibly be MG?

Thanks for any help.