Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 10-23-2010, 10:16 AM #7
Stellatum Stellatum is offline
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Join Date: Feb 2010
Posts: 1,215
15 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
15 yr Member
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We wish you the best, Tyson. Annie59 is very wise to point out that a lot of different emotions get expressed as irrational anger.

Part of the problem, too, is misunderstandings of the disease. I'll never forget one friend who said, "Oh, myasthenia gravis! Yes, I know what that is. My mother thinks she has it." Me: "Really! What are her symptoms?" Friend: "Oh, when she exercises a lot, she feels tired." Yeah.

Yesterday I told my mother I'd made an appointment with the neurologist earlier than scheduled because my arms got so tired trying to eat soup the other night. Had to rest in between spoonfuls. She said, "That's a good way to explain the disease to people who don't get it: tell them how you had trouble lifting the soup spoon."

I told her light cooking isn't exactly my specialty (my heritage is Eastern European Jewish) but that I had really struggled to make a nice light soup, with broth and everything! OK, it was lentils. With potatoes. Still...

Tyson, you're so smart to set your priorities straight. We are all rooting for you.

Abby
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