Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 12-03-2010, 08:46 AM #1
busybusy busybusy is offline
Junior Member
 
Join Date: Nov 2010
Posts: 58
10 yr Member
busybusy busybusy is offline
Junior Member
 
Join Date: Nov 2010
Posts: 58
10 yr Member
Default I have a question

Before I was diagnosed with MG, I could do an activity or go away for a weekend and it would wear me out. It would take me days to get over it. I am a little confused now that I have been diagnosed and reading the forums. Are there different levels for MG. For example, some talk about how hot weather affects them and cold weather makes them feel better. I have been reading about MG crisis. What exactly brings them on or does everyone have one at some time or another. I guess in the past I chalked everything up to exhaustion and now I really don't know what to do, how to feel, or what to expect. I guess I am more afraid of doing things and pushing ahead or waiting for some symptom to appear. I am confused on how I hear that it comes and goes. I have read as many articles as I can read but nothing sticks very long. Exactly, how do you know when it comes and when it goes. I know my breathing has improved and the drooling at night has improved, and the pain in my legs have improved somewhat. Do all the symptomes completely disappear and one day you begin to feel tired again. Am I reading too much into everything and trying to figure out too much. I enjoy these forums and have been educated quite a bit and thankful for all that I have learned. Maybe I should forget about MG and just pretend it isn't there. Maybe I am thinking about it too much. Struggling with answers. busybusy
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