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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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12-29-2011, 10:52 PM | #14 | ||
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Grand Magnate
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Abby, There's another option to consider, if you don't mind needles. Hizentra is the subcutaneous version of IVIG. They can train you on how to use it and then you could do an extra dosing in the comfort of your own home. It doesn't have as many side effects either.
http://www.hizentra.com/consumer/default.aspx I haven't used IVIG (can't) but know others who have. I'm glad your neuro is open to something that isn't an "alogrithm." Treatment is different for everyone and depends upon your activity levels too. I hope that extra dose helps you out. Annie |
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