I have been lurking on here for a bit, reading other posts, trying to see if anything sounds like what I have been experiencing but am mostly getting more confused

My most concerning symptoms getting progressively worse from about 2.5 years ago:
* extreme weakness, can't sit, stand for long or climb stairs
* trouble breathing, shallow, pain/pressure upper center chest at throat
* vision problems, focus, drooping eyelid, loss of peripheral vision
* numbness in feet daily, fell twice

other symptoms
* store lights/ bright outdoors cause eye problems, feel off balance
* heavy like a rag doll when tired
* feels like throat is closing up, causes choking, wakes me at night
* slight tremor

I have had blood tests about 10 times with normal results; had both scopes done, found stomach inflammation; cardiologist testing, tachycardia no cause; adrenal testing, mixed results.

About a year in, thinking it was adrenals, I tried replacement steroids which helped somewhat, able to do light housework, started driving a bit. After 2nd adrenal test (I failed) the endo had my dr. wean me off them as she said the low function was caused from the steroids. Off them I went back to how weak I was before and continued to worsen.

About 4 months ago at an appt. I mentioned my vision problems again to my dr. and happened to have the drooping eyelid so he suggested testing for MG (I had never heard of it). I had the Acetylcholine Receptor Antibody blood test and an EMG which showed nothing so my doctor said no further testing is needed. I have since read that is not correct.

At that appt. he said I would just have to accept that it is anxiety ( I have a history of it). I tried to explain to him that my physical symptoms could not be explained by anxiety but he does not take me serious. I explained how bad my breathing was and he did not even listen to my lungs just ordered a lung test. I haven't been back.

I have an appt. next week with a different dr. who is his holiday replacement to get the lung test results and I am considering asking if she will refer me to a MG specialist who is an 8 hour drive from where I live.

I am feeling very desperate. I am so weak sometimes that I barely make it to my bed, it comes on suddenly. I really feel like a rag doll if I sit for as little as one hour. When I get my weakest my breathing is so shallow it is scary. I have stopped driving completely because of the weakness and my eyes randomly mess up. When this started my weakness came on later in the day but now it could be as quick as one hour after waking.

I am confused if this could be MG because, although my main symptoms seem to fit, some of the others don't. I haven't seen numbness or tremor listed as part of it and I also have a fast heart rate, low blood pressure and others that make me wonder.

My husband would drive me if I can get referred but it would still be a very difficult trip for me to make. I'm sorry for the long post and thank you if you took the time to read it all, I do appreciate it and any comments you might have

I took a pill to help me sleep so I may not respond tonight but I will be sure to check when I wake up.

~jules~