Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 12-18-2012, 09:15 PM #15
AnnieB3 AnnieB3 is offline
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Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Hey, Dottie. I figured out in 2006 that I've had MG my entire life. I just adapted to everything physical. Did you have MG antibodies? If not, it could be a congenital myasthenic syndrome. They are genetic, not autoimmune. OR it could be MG since birth or teens. You should speak to your neuro about that. Do you have good photos from your teen years you could dig up and see if you had ptosis back then?

Yeah, it really does suck that we can't be normal. But those people were so nice to you. Maybe our disease is a good test for others to have.


Annie
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