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Old 07-17-2009, 12:30 AM #8
SharS SharS is offline
Junior Member
 
Join Date: Jun 2009
Location: Tennessee
Posts: 58
15 yr Member
SharS SharS is offline
Junior Member
 
Join Date: Jun 2009
Location: Tennessee
Posts: 58
15 yr Member
Default Hi Linda

Welcome to the forum! Everyone here is incredibly wonderful and so supportive.

I have not had plasma exchange but have been having IVIG treatments for 2 years. I have had them anywhere from once per month to once per week, which is what I'm doing now. As you mentioned, it is very important to have the solution go in slowly to avoid side effects - also to hydrate before and after.

The only problem I've ever had with blood pressure and the IVIG is for it to spike high if I have a double treatment (1000mg). I can't do those anymore because of that problem. I am on blood pressure medicine but I don't think it has anything to do with MG.

I couldn't make it without the IVIG treatments. I take Mestinon, sustained release Mestinon and CellCept in addition to the IVIG. I can't be on Prednisone because it make my blood pressure spike really high.
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