Hiya

I am new to this site. I was searching for more information on CRPS and was having difficulty finding any info.

In the Uk there seems to be so little known about it. I have suffered with it for over a year now, and had began to get depressed as no support or any ideas beyond a lumbar block which didn't work.

Having a quick search on here has already helped but all the posts are old. Does anyone out there have any advice for what I can do to make life easier?

Thanks in advance.

angelkirst ,

Hello and welcome to NeuroTalk. Happy to see you have found the site. Just let us know if we can be of any help.

There are great number and caring fellow members here, just let us know how we can assist, we are a supportive and relaxing group friends. Our shoulders are here for support in many ways.

Hope you get a solution with your medical problems soon. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Welcome to the Forum. Many wonderful people are here to support you and help you through the good and bad times.
I was a little surprised that you have not found help in the UK. My pain Dr. from the U.S. goes to the largest CRPS conference held every year in England. I think that the university would be able to point you in the right direction. I read that Holland, Scotland, and England have the highest rate of CRPS in the world, and they have developed many of the treatments, we are slow to receive in the U.S. such as Ketamine,outstanding physical and occupational therapy techniques, and other treatments. I also read that the original protocols were developed in the UK. I hope you can find some of these organizations soon so that you can receive the proper treatment for your particular condition. Not all treatments work the same for everyone. It is better to receive treatment asap so that you can have a better chance for remission.
Thank you, and know you are never alone.

Glad you've found NT!
Yes RSD/CRPS is very frustrating to battle. I see you've found the forum and I noticed you posted up in the top section called the 'Sticky', which is great. Many people introduce themselves up there and there is a lot of valuable info also.

If you look a bit farther down the page, you'll see that's where all the active posting takes place. When you get to the CRPS forum, start a new thread (there's a 'new thread' option toward the top/left of the page).
There are lots of people suffering with this and they would love for you to join in.

It's great to have you!

Caring,
Rae