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Old 04-07-2009, 01:27 PM #1
sheds sheds is offline
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Default What to expect 3 months out PCS

Here is my story...I had my first ever seizure just before Christmas. I was taken to the ER and while waiting for the results of my CT scan, I had another seizure. The railing on my bed was not up at the time and while I was seizing, I fell out of bed onto the floor. I ended up with a broken nose, deviated septum and a huge goose egg over my right eye. I was in the hospital for 1-1/2 days. Can't remember hardly anything from entering the ER to dismissal from the hospital. It felt like my brain was "sleeping" for the first month. No real problems. Then, in February, I couldn't work-out without becoming extremely fatigued, had problems with short term memory recall, word recall, over stimulation, etc. This has continued as I am still having these issues. I saw my family physician who said I was suffering from major depression because of a change in my health (seizures). She increased my antidepressants and told me I would feel better in 2 weeks. Well, it has been two weeks and no difference. I saw my neurologist last night and she is going to switch my meds to see if that helps with the fatigue and irritability. She also told me that post-concussion symptoms can last up to 6 months. I have a headache every day, especially above my right eye. There is actually a goose egg still there. No one ever addressed the head injury before. I was never told what to expect or some of the symptoms to be looking for. After reading some of the posts and how long people have had symptoms, I guess I shouldn't whine. I saw a neuro psych person this morning who said I am going through a grieving process right now. I am just worried that I am going to stay this person that I don't necessarily like. I have no emotion. It's like I am just "there". I would love to hear from anyone who has had similar issues.
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Old 04-07-2009, 03:08 PM #2
Dmom3005 Dmom3005 is offline
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Welcome Sheds for one thing. Next you have come to the right place to get some support and help. And yes, it does take some time to go through the PCS, but even though its keeping you down right now. Don't let it keep you down. It will get better, it will just take some time. And one of the things you are going to have to realize is that no one diagnosed this for you in the beginning so you were dealing with thinking it was something else only.

Because yes you were depressed and having headaches. But you also were
having a concussion, and post concussion syndrome. And personally if you still have a goosebump I would be wanting to have it looked at by MRI's and things like this to make sure that its not causing more problems since your still having severe or what to me sound like that on that area.

So talk to a neuro or doctor that deals specifically with this condition, and ask about more testing. Also there is a PT program at times, that can be gone through, Physical Therapy that will help. See if they will let you try this out. It helps with balance and things like this.

Donna
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Old 04-07-2009, 04:13 PM #3
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Hi, and WELCOME

It's okay to whine, but that's not really whinning. You have reason to be very concerned.

First, not to cause any alarm, but if you've not already taken a picture, I hope you can still take a photo of the "goose egg" or any brusing you may have that you think is related to your fall. That needed to have been documented also by the ER records.

You may want to start a journal of things regarding your seizure episodes and this accident in the ER, your pain, your memory of that whole day, as best you can recall on that date. You can add comments as you remember. date them too.

Write down your appointments so you don't miss them. It's easy to forget if you're distracted and hurt.

Write down your meds you need to take and when you take them so you won't forget or if you get into another seizure situation it may help your situation to know what you've been taking. Note any other info you feel necessary in that situation. Let family, neighbors know where this info is kept.

If you think you need someone to help you because you're not capable mentally at this moment, ask a trusting person you know for their oversight. I would see to my friend if they had a head injury to deal with.

Write down who you talk to about medical records or anything concerning your seizures and the fall, like date, time, whomever you speak with, ask for their name and write it down. what they said put in " "s. You may need it to jog your memory later, and theirs.

Not a good thing to be in there for seizures and not have bed rails UP. No excuses for it, please.

I think you should get your actual original or copy of the CT films you had just underwent before this fall to the floor. You can call ahead to find out the process so you won't waste a trip. And get your CT report also. Sometimes they offer those on DVDs or CDs. There may be a fee where you're at. Ask about that, though. If you're able, go in. There's two purposes for this. One, it is PRE the accident. You may want to consider a POST accident CT to compare before and after if your complaints persists. Two, you need them to investigate your seizures. It sounds like you have seizures and whatever diagnosis from the injuries from the fall.

At a later date -- give them time to complete the file, sign off on the file, then get a copy of your medical records.

You do get fatigued easily with concussion. Find a doctor who will address the injuries and treat accordingly. Head injuries are challenging.

Stick around and check out the Traumatic Brain Injury forum here at NT. I'm sure they'll have lots of help for you.

Take care and get some rest.

It will take time.
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Old 04-07-2009, 08:22 PM #4
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Hello Sheds and welcome to NeuroTalk. Sorry about all you've been through, but I'm glad you found us. Everyone here is so caring and helpful, so please make yourself at home.

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Old 04-08-2009, 01:48 AM #5
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Welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible. I have list the link to the Epilepsy foruim there are a great number of ones there to assist you.

http://neurotalk.psychcentral.com/forum11.html

Again welcome, looking forward to seeing you around.

Darlene
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Old 04-08-2009, 09:39 AM #6
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Hi Sheds, and welcome to NeuroTalk! This is such a great place to hang out with many forums and topics, and with lots of caring and helpful people.

I agree with Broken Wings, keeping a medical journal is very important.

I'm sorry no one thought to put up the side rail and you ended up on the floor, hurt.
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