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Old 04-19-2009, 08:17 AM #1
Cooze Cooze is offline
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Default Hi from Ireland
Hi there,

I am a Loeys Dietz Syndrome patient. LDS is a connective tissue disorder and affects me in a number of ways. The latest appears to be with a gigantic 11cm Tarlov Cyst! Ive posted about this in the appropriate section.

Im here to try find help on this as I need to get rid of it!!! Doesnt look like many Docs are willing to touch them though...just great! There isnt much room inside me for anything else!

I would be grateful for any advice members could offer.

Cheers
Rachel
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Old 04-19-2009, 09:03 AM #2
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Hi Rachel, and a warm welcome to NeuroTalk! This is such a great place to hang out with many forums with interesting topics, and lots and lots of friendly and caring people.

If you want to have some fun, try Games and Such. I've posted the link here for you.

http://neurotalk.psychcentral.com/forum104.html

Hope to see you around!
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Old 04-19-2009, 02:35 PM #3
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Quote:
Originally Posted by Cooze View Post
Hi there,

I am a Loeys Dietz Syndrome patient. LDS is a connective tissue disorder and affects me in a number of ways. The latest appears to be with a gigantic 11cm Tarlov Cyst! Ive posted about this in the appropriate section.

Im here to try find help on this as I need to get rid of it!!! Doesnt look like many Docs are willing to touch them though...just great! There isnt much room inside me for anything else!

I would be grateful for any advice members could offer.

Cheers
Rachel


Hi, and Welcome

I've always wanted to visit Ireland. I hear it's clean and beautiful.

I'm sorry you have these things to deal with. I'm not familiar with it. Someone will come along to give you better info.

There's lots of smart people here to help you find your way. They're a great bunch of people to get to know.
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Old 04-20-2009, 04:54 AM #4
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Welcome to the board!! Just hope you can feel at home here! Lots of great folks hang out here...just cruise around and don't be afraid to ask questions.
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Old 04-22-2009, 01:58 AM #5
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Welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

Darlene
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