hi, I haven't been on here much lately, but truthfully, I definitely should have been. For the past 2 months I have been having the strangest symptoms. I have had tremors after taking my morning dose of stalevo and it was as if I had not taken any. Other times, during the day, all of a sudden, I would get severe neck pain/spasms, then dyskinesia and swelling and pain in my left ankle. I tried taking another pill, tried not eating to help the 1st pill absorb better, tried eating certain foods, well, you get the idea. in between this happening, I would have days when I was pretty normal. I could not figure it out. the dose i was taking was the same dose i had taken for a year, nothing had changed in that regard. I was also taking azilect 1mg and requip xl 4mg every am. All of these symptoms were helping to increase my anxiety and I was given Lamictal for it because the MD felt it might be the safest with the other drugs. after a few weeks on that, my neck became so painful that I couldn't turn my head to the left. at this point, I have had to quit working. I saw my neurologist in december and he started to adjust the meds. I started on 125mg of stalevo in the am, and then 100 mg every three hours during the day. today I am on 75mg of stalevo every 4 hours 4 x day. I am taking requipxl 6 mg. I am still having neck pain, and spasms, still having dyskinesia, still having tremors, mostly when the pain is most severe. my physician's nurse wants to know whether I am on or off, and frankly, I don't know. The worse symptoms seem to happen within a short time after I take a pill, and never the first dose. after all this time I have become very discouraged, and I am beginning to understand what it feels like to be severely disabled and hating every minute. I always tell people I am hanging in there, but how long can I do this without wanting to give up. I am not a wimp but this disease is trying to do me in. thanks fg