there are people here in this forum who have, at some point stopped sinemet?? even if was for a couple weeks? without any serious trouble?

i think my brain was poisoned, in part, by continuous anti-depressant medication, 1990-present.

Ibby,

Thank you for the information. I will download the book and use it as a guidence.

Good luck to you too.

Bonny, I will contact you Wed. I will be on the island (Comox) mid May for two weeks...ANY CHANCE OF MEETING???

Paula; Dystonia is a variation on tremor, muscle contraction!

Anyone had a 4 point cortisol test?
A Naturopathic Dr. is more useful for this type of thing.. more open minded and holistic.

Ibby: I will look at the book..do you have a website or link for it?

good nite. ....Joy

Wednesday good. Contact in May good as well; unless you can get me in the psych ward in Comox for drug withdrawal, I can't seem to get there myself. The psychiatrist thinks my only problem is that I can not accept that I have pd. Rather a hasty, one-time meeting decision on his part. Look forward to speaking with you. I have also sought out Integrative Medical options. No, I have not heard of a cortisol test? Appreciate some feedback on this.

Quote:

For slow, safe med reduction info, download Janice Walton-Hadlock's book on The Medications of Parkinson's Disease - Once Upon A Pill. There is a chapter on how to safely reduce meds. I've tried it w/ good results. Good luck. Ibby

Ibby, before the Mirapex nightmare one of the neuro students who tested me said my balance was 100% and the same comment was made "I would not know that you had pd". That was three years ago. I am off Mirapex and all the terrible side effects that you have heard about ceased but I have failed to stabilize because I have this 11 yr. dopamine habit. I know of Janice Walton - Hadlock and a couple of her former clients. Interesting reading "Once Upon a Pill" and impressive that it is free. She also has another free download book "Recovery From Parkinson's Disease" I question her foot theory but many of her observations are bang on.

Rosebud


I was diagnosed 3 1/2 years ago with with P.d..I am 53 years old ,I was having lots of symptoms 2 years previous to being dianosed ,but it took 2 years to find out what was wrong with me I have had it 5 years that i know about but my Neuro said that he thought i have had it possibly 5 years previous to that.I have been on Madopar 100/25.1x 3 times a day and Tasmar 1x 3 times a day I think that this is a small dose .my neuroligist said i am very sensetive to the levedopa.

I heard about the mucuna pruriens and thought i would like to give it a try.I purchased the mucuna and started it on a weekend as i did not want to try anything new while I had to go to work.
I have been on it for nearly 5 weeks now and it is working well.In that 5 weeks I would have taken about 80 madapor and 80 tasmar ,There has only been about 3 or 4 times over that period of time that the mucuna did not work and as i was at work so I took half a madopar on those ocassions.It wasn't until I read all the posts that you have all been writing that i realised that i probably should not have gone staight off them.i just wanted to tell you that I did not have any problems when i stopped all my parkinson tabs. I feel that the mucuna is really working well for me,When i start to go off with the mucuna my off times are definitely not as bad as when i was on the parkinson meds.With the parkinson meds when I was off I would have to sit and wait till I was on again because my legs were so shakey and i got the internal tremors back ,my fine motor skills were not good all my p.d symptoms came back.On the Mucuna my off times are no where near as bad I can still work and feel stable on my legs.My fine motor skills are really good.I feel that I am much better on the mucuna, A couple of times I have gone about 6 or 7 hours before needing the Mucuna.I dont know that the madapor that i took made my parkinson's better or worse i had so much going on that i did not know if it was my parkinsons or the medication giving me problems,But i do know that i feel so much better with the mucuna ,and dont have any side effects especially no dyskensia which was my biggest problem.

I just want to say how much I enjoy all your posts you all know so much about parkinson disease,It is great to be able to talk to others who understand.


sue

Thanks for your post Sue, I first heard about it from MaxBC and actually met him. I learned more from other posts on this forum. I will be ordering some today. Do you take the powder or tablet form? Did you order it from India?

That's impressive. Mine is really bad lately and I am seeing why - the asymetries in my body...weak muscle here, twisting sacrum, caving off plane torso....Visible if you look. ALL of this = my PD symptoms, plus of course the dopamine thing - the depletion of which gradually happened over time due to the unrelenting "tension" caused by an out-of-whack frame...and will continue to do until it is back in - or at least moving toward - Tensegrity. Biotensegrity.

I have cometo these conclusions after about 9 years of PD, largely due to experiencing several 'alternative' therapies - including EECP, Upper Cervical Chiropractic and Janice W-H. Yes, J is "bang on' ...sometimes. She's brilliant, charismatic and quiite tunnnel visioned. Her therapy didn't work for me or anyone I know but there IS something about the stomach channel and the foot blockage. And on drug reduction info - she's unparalelled ... ie all we've got. Who else has observed pwp reducing meds!

ibby

[QUOTE=Ibken;269763]That's impressive. Mine is really bad lately and I am seeing why - the asymetries in my body...weak muscle here, twisting sacrum, caving off plane torso....Visible if you look. ALL of this = my PD symptoms, plus of course the dopamine thing - the depletion of which gradually happened over time due to the unrelenting "tension" caused by an out-of-whack frame...and will continue to do until it is back in - or at least moving toward - Tensegrity. Biotensegrity.

I have cometo these conclusions after about 9 years of PD, largely due to experiencing several 'alternative' therapies - including EECP, Upper Cervical Chiropractic and Janice W-H. Yes, J is "bang on' ...sometimes. She's brilliant, charismatic and quiite tunnnel visioned. Her therapy didn't work for me or anyone I know but there IS something about the stomach channel and the foot blockage. And on drug reduction info - she's unparalelled ... ie all we've got. Who else has observed pwp reducing meds!


ibby

I meant to ask if the recent x-rays showed anything at all?

AAnd are you feeling any better?