Hi everyone,

I need a little help from the community.

In July, I will be presenting at the NPF Young-Onset Conference on the topic of PD and children. While my head is FULL of developmental theory and knowledge in regards to children, I do not personally have any of my own. In the past, I have literally worked with 1000's of children and talked with them about a parent, sibling, friend, or other loved one who had a disabling and/or life threatening illness. (As well as talking with children who've dealt with these types of health issues personally.) But I'm missing that "personal" element of not having my own kids as a PWP.

What I'm hoping is that you'll be willing to share stories of your personal journey with PD and your children. Comments they've made, questions they've asked, answers you've given (or not given and why), struggles (and successes) you've had with both young and adult children, and stories to share.

I would keep your identity private, listing what you gave me during the presentation as, for example, "Kelly M. from Minnesota, 46, dx. 3 years, two children ages 6 & 12". Or simply as "K.M." Privacy is imperative.

If you want to post stories here for all to share in, that would be great. (Like the one Carolyn recently told about Mothers Day). But if you want to keep your responses private, you can email them to me at Todd@PDTalks.com and I will keep them confidential.

I like the way my presentation is shaping up, but the missing element is the true human touch that only you all can bring to it, so I hope you'll help me, and eventually others, with your stories.

Thank you so much!