I'll try biofreeze. Do you think backing off on the suppliments is a good idea or is this maybe a syptom of recovery? I'm realizing it's detective work

I think if you have no other symptoms from the supplements, that you should continue.

There are changes that may occur. Supplements are slow going. They are not like drugs. They slowly insert into systems that need them.

Basically I have not seen anyone have "negative" changes...enough to be concerned about stopping. There are NO changes, sometimes, for a time period...because the body has to adapt to having nutrients it was missing. Things sort of have to "wake up"...and get going again.

The biggest change is to your wallet. And I am not trying to be funny...but it is true. These are costly and many people cannot afford them. The supplements we all use here are very benign. But don't hesitate to report here...because we all learn from each other. I've used high dose supplements for 10 yrs, and I have no cancer yet... I am in my 60's.

Some nutrients... esp folate now... are implicated in "feeding cancers". The increase folate suggestions for young women have led to some increase in colon cancers. This doctor came on a thread recently and addressed this new concern:

http://neurotalk.psychcentral.com/post663808-20.html

This is the whole thread:
http://neurotalk.psychcentral.com/sh...ghlight=Metanx

This problem refers specifically to folate and cancer so far, and is pretty new.

I've talked to an oncologist, who was clueless about nutrients and chemo. And I've talked to a breast cancer patient who credits her survival to using flax oil during her chemo. So there are no real answers to everyone out there.

First off, thank you for all the time you've given to me over the last few days. I really appreciate it.

I'm taking from your post and links that everything should be go to go. The Folic Acid is a concern as my tumor was colon and I get the pleasure of yearly colonostopies I don't think I'm taking it at all...am I?


Yeah the cost of suppliments is no laughing matter, but laughing makes the pain go away

it could be a symptom of recovery, many people who are reversing pn report pain similiar to what they had when the first got pn and it began progressing. sometimes this presents itself in periods of feeling better and then apparant regression with symptoms and then feeling better again and so forth. it is only after looking at it for a period of time you can tell if its that you were getting better. i would keep taking the supplements.

A friend takes LOTS of 'fiber' and such and there are 'back-ups' in the 'flushing systems'! Not fun....
Enough of that tho? Just eat well/healthy [not hyper so tho?] and do think POSITIVELY! Thinking positively about/cancer is the beater of it!
Folic is a good one for you and not to be ignored... go web it up? You'll be surprised at what IT can do, and more importantly, at this time what it mite be able to do for you.
Please keep us all up to date here on how you are doing? You've gotten a lot of response and we can all help each other! 's!!!!!! - j

I saw that you were on an antibiotic recently. Have you been using a probiotic supplement to combat the effect of it and re-establish the good bacteria in gut?

Also, John would have increased activity/pain for a couple of weeks when he was in a healing mode. It would then settle down at lower pain level until the next healing event.

No, you are not taking the folate in high dose, unless you forgot to tell me so far. I'd keep the folate at 400-800mcg/day if you take a multi --it will be in there. We get folate from enhanced flour products, pasta and cereal now in the US.

Until this is more clearly explained, folate vs active methyl and which is the culprit and in what doses, we should all be moderate with folic acid. (methyl folate is the active form).

The doses that were implicated so far were above 2mg/day and more like 5mg/day.( in younger women who were taking it to prevent spina bifida in their babies).

Thanks `for the reminder. I started probiotic the day after I finished the cycle

No MrsD everything I'm taking I listed. Going to switch over to the R-liopic tomorrow.

It's been 1 week since I started this......I definitely feel improvement

The crampiness is better and the lesser affected foot has periods of feeling normal. In some ways the other foot can be alittle more intense than before w/o as much crampiness at times but it feels like its improving as well.

I figure it will take some time, but I think I'm heading in the right direction. The plus is that even though I'm still taking the gabapentin, I'm starting to feel a little more energy or enthusiasm. Now doing the dishes doesn't feel like climbing Everest, but more like climbing Pikes Peak in an old Desoto

I like that analogy... I was limping along earlier this summer like that old DeSoto! The fins back then! Ahhhhh... you know there is a TV series set in the mid 60's called MadMen, on AMC...I've been watching those cars avidly. HEHEHEHEH.. Season 3 is on Comcast onDemand and season 4 starts next week! (I'll miss that because of our vacation, and hope they put it up onDemand too) When I was a little girl in the 50's, and teen in 60's I loved those old cars! They have great detail on that show, with all sorts of stuff from the 60's..the cars are great! I also enjoy the clothing, details. If you like nostalgia, you'll love MadMen! (MadMen stands for Madison Ave. Men...who began most of our advertising. It is very interesting to watch to see how they come up with ads etc)

You might find the d-ribose I am testing out useful too. It has really perked me up, I have to say.
Here is that thread:
http://neurotalk.psychcentral.com/sh...ghlight=ribose

My right ankle which has been killing me lately since spring, has finally started to go down...I've had 3 normal days in a row this week. The swelling is down, and the stabbing nerve quiet for now. I am pleased. But no guarantees in this PN life...so it may return. I will enjoy the peace while it lasts!
I am thinking the ribose is working!