Periodic zap are back tonight.

Hi Stacy,
Try not to worry. I have had the zaps since shortly after my PN began. It comes and goes now. If they get too bad you may need to see your doctor. You are correct though most of their response is to try this or that medication.

Good Luck!

Things are not good all around right now. The burning is out of control.

I had 2 great weeks where I was amazed how good I felt now its the opposite. It sends me in a downward spiral of what am I doing wrong, what caused it, what food, supplement, etc. do I need.

Does anyone else have a tendency to blame yourself when things turn bad???

Stacy, please don't blame yourself or waste energy trying to figure out if you did something wrong.
Every one of us, whether suffering from diabetic, toxic, alcoholic, hereditary, cancer treatment related, or the infamous "idiopathic" (many of which I believe are hereditary) neuropathy has good days and bad, or bad days and worse. The bad days can stretch into weeks, and you find yourself with a new normal that is not quite as good as before. You have limited control over this disease.

I am afraid that many modern books and magazines with their emphasis on manipulating health through diet, exercise, and supplements can have the effect of blaming the patient who finds herself with a chronic disease. If you are taking the supplements recommended here and have experienced some improvement, you may be doing all you than you can. Your energy would be better spent trying to make yourself as comfortable as possible, doing something that you enjoy, thinking of little treats for yourself while you ride out the lows.

Stacy, remember that the good days can come back like they did before!

I do know what you mean Stacy every now and then I wonder if I did something wrong to cause this but then I realize it wasn't my fault.

I agree with Suzanne about the books etc. that make it seem they blame the suffer. I particularly dislike the ones that say it is mind over matter and your mind can make the disease go away. I always think do these people think we want this. Do they not realize if we could think PN away we would.

I think a good attitude and taking the supplements, eating well, doing as much exercise as tolerable, etc help. At least it helps me. But we go into flare ups. Many times I haven't changed a thing when the flare ups occur. Sometimes it is as simple as a change in weather. It has been so hot and humid here.

So don't blame yourself. It's not your fault. Things will get better again. Take the time to take care of yourself for now

Thank you.

My head knows and understands that I don't do anything to cause my pn but in those moments of panic, desperation and self pity I allow dumb thoughts to enter. I try to stay positive all the time, but sometimes I just fail. Lately I have been consumed with feeling helpless and like things are going to get worse and worse. I know it's irrational, stupid and all but I guess I have fallen and cant get up, lol.

Not to say I WONT get up, lol. I will get there, eventually. I know my attitude greatly affects me and this attitude is not helping but I accept that every now and again I simply have A BAD ATTITUDE.

But it's time to pull my big girl panties up again and move pass this bad attitude. I have been stuck here a little longer than usual...it isn't the pain as much as feeling like it's just gonna keep getting worse and worse until ...well until. But I know I need to move on.

thank you friends for giving me a place to vent what I don't say to anyone else, not even my husband. Our faith is such that we believe there is power in our words so we confess what the word says or the positive not the negative, so I don't ever say all the awful things I sometimes feel. I mean, I do say I am in pain but I do not say all the fears I have for my future.

You can't always be positive so vent here and we will try to help!

Thank you Sally!