Well, I have so much to learn about:

SFN
LFN
CMT

I have some idea of autonomic neuropathy. I know I have some features of it, mostly bladder, some bowel, and the Orthostatic Hypotension. Probably others.

One of the hardest things for me is that none of these conditions really has direct treatments, AND most doctors don't understand them well.

The ordinary person hasn't a clue. And really doesn't want to learn all that much about most illnesses.

I have to accept that, even when they ask and look interested, I can see their eyes glaze over when I try to explain. And the questions they ask tell me that understanding is so far away from possible that it wouldn't be fair to most people to try to clear up their confusion.

My SIL, a nurse, cannot understand WHY I would take a treatment for my Immune Deficiency that causes unpleasant side effects. 'Why not just forget about it? Just stop doing it.'

I have to work harder at letting go of my resentment that she said this. It isn't my problem, is it? If I worried about what others were thinking and saying about me I would be one unhappy camper most of the time!

So I will look up SFN, LFN and more on CMT. It is interesting that when someone identifies a condition, particularly genetic, that it gets their names! How many think some one with CMT has a dental disorder?

Hugs, Elaine