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Old 04-23-2014, 11:36 AM #13
evandtwins evandtwins is offline
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Join Date: Mar 2013
Location: San Diego
Posts: 17
10 yr Member
evandtwins evandtwins is offline
Junior Member
 
Join Date: Mar 2013
Location: San Diego
Posts: 17
10 yr Member
Default DNA Testing

Quote:
Originally Posted by mrsD View Post
My doctor took several weeks to get in gear regarding my
angioedema. She has colleagues at a teaching hospital and often consults with them too. Their availability etc is an issue.
And at least she knew about and we discussed it.. and based on her CME recently and adding up all my "incidents" she now has given me that diagnosis.

I asked for the angioedema testing which she was reluctant to do in the past....but she then tuned up on it and did it for me last checkup. The results were fairly normal, but she said I'd have to be in a flare to show much in the blood work.

You have to give some doctors the chance to work for you.
If you stress your loss of quality of life, pain, etc, she will likely be more motivated. Doctors don't like you to diagnose yourself.

I still think you need testing for gout, and heavy metals.
That HCTZ you take is notorious for causing gout.
http://www.nlm.nih.gov/medlineplus/e...cle/000422.htm
Stacy,

My guess is that the "kit" you refer to is a DNA test. I had those as well, and someone came to my house to draw the blood and sent the kit back east via FedEx for testing. It is very expensive, so your insurance has to approve first. I hope you get the answers you are looking for.

My SFN is still idiopathic and I'm still searching for the reason I have SFN twenty years and four months later. I hope you find a definitive diagnosis right away so that you have peace of mind.

BTW, what is EM?
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