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01-27-2015, 05:48 PM
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#21 | ||
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Hi Marie33, I paid myself to 23andme (look it up online), it was not too expensive. My new neuro didn't seem too interested, but he will test for one specific gene which seems to be very relevant in neurology, SMN1, I think to confirm my diagnosis and to exclude something.
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Multifocal motor neuropathy with conduction block since late 2005, diagnosed 12 November 2014 |
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01-27-2015, 05:52 PM
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#22 | ||
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I was stupid enough to order my test from 23andme AMERICAN branch, with FDA restrictions in place, without checking if they operate in the UK also. They do, with no FDA. And I'm actually in Europe. I think my brain was fogged by everything related to my illness.
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Multifocal motor neuropathy with conduction block since late 2005, diagnosed 12 November 2014 |
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01-27-2015, 05:54 PM
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#23 | ||
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mrsD, how much methylfolate would you take for every, say, 1000 mg of methylcobalamin? Would you take it with food? Got it today, but not sure what dosage makes sense.
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Multifocal motor neuropathy with conduction block since late 2005, diagnosed 12 November 2014 |
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01-27-2015, 07:07 PM
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#24 | |||
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Wisest Elder Ever
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800mcg a day of the methylfolate to start. There are no food restrictions I know of for it.
The methylB12 requires empty stomach and no food after for about an hour. And this explains your gene in more detail: http://ghr.nlm.nih.gov/gene/SMN1
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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| "Thanks for this!" says: | aneczka (01-28-2015) |
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01-28-2015, 05:48 AM
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#25 | ||
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They want to exclude SMA, so. ALS is fairly out of question in my case. I have pills of 1000 µg folate, so I will take one daily.
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Multifocal motor neuropathy with conduction block since late 2005, diagnosed 12 November 2014 Last edited by aneczka; 01-28-2015 at 06:26 AM. |
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