Thanks for resurrecting this thread. My story is here, if anyone wants to read about it, which reminds me that I need to respond: http://neurotalk.psychcentral.com/thread229734.html

Mine started in my mid-30s, but thinking back as I say it must have started in my early 30s. Still trying to find the cause, since it just exploded onto the scene several months ago. Autoimmune is suspected. Mine is all over my body too and pure SFN.

45. Onset of symptoms at 42.

30. Initially felt like my life was over, but I'm able to manage my symptoms a little bit better over time. It's been about a year.

45. Onset of symptoms at 43.

I started having problems with a right toe when I was 24 then various other areas, left shoulder, neck, both shoulders, arms and pins and needles in my hands. Proceeded to start affecting my stomach more but didn't k ow it was related.

Couple of years ago my feet and legs started to ha e issues with pins and needles. Like ants crawling up and down my legs. But ing sensations on my shoulder, legs or back of arms. This all lead to gait problems and using a cane for a year due to drop attacks.

I'm 41 now. 4 neurologists later finally found out I have small fiber polyneuropathy. Been on medications for 4 months ago. I'm doing a little better. I'm starting to have a life again but the flare ups are just difficult to deal with.

Found this website when I was at a big low. Many of you have provided me with great I formation and I hope to share more about my symptoms.

Thanks!
BK

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41 as stated on page one. Since then I have had that plugged into an electrical source feeling in my limbs daily to carying voltages. It is bearable and I still feel in the scheme of things it falls more into discomfort than pain, though that exists too. Tramadol and topamax keep the shooting pain down as long as I do not overexert myself.

I am not as dilligent as some on diet, though I do eat vegan. I will suffer the side effects of the odd bagel because they are delicious. I am sure that had I not adjusted my diet and dedicated myself to exercising to tolerance (which has changed over time, lessened a lot in the last year actually) stretching, eating better that between pn and shingles this year I would have been in the hospital, out on comp or both.

I am a diabetic, though glucose is currently well controlled, though my symptoms are not. Stress reduction has been a nice boon to sleep and overall well being.

For anyone who is new to dealing with this I understand it is easier said than done, but try to adjust your diet, even in small ways. Cut your carb intake in half. Start somewhere.

Jon

mine started at 44. im 58 now.

I started when I was 37. I just turned 40 last week.

which was twelve and a half years ago. Of course, mine was one of the most acute onsets ever seen (akin, as I've said, to a small-fiber sensory Guillain Barre attack).

I was 42 when it all started
Anyone else had low white cell count/ low red cell count/ iron deficiency anaemia found as a by product of testing?
My whit cell count is just 2, my hbg has climbed to 10.
Is it just me?