I have not tired Benfotaimine. Looks well worth taking. Thank you!

Cliffman

Good advice...thank you.

Cliffman

Thanks for the encouragement Ken!

I am a CPA. I work seasonally in tax, usually January - July. I sit at a desk all day so it's not too bad, but I am usually really looking forward to July.

If it wasn't for these breaks I don't think I could do it. The pain level is just too much.

I'm happy to hear you get a break...it's not easy at all trying to work.

Cliffman

I've been taking Doctor's Best Benfotiamine 150 for a few months and I truly believe it has helped with my SFN symptoms. The dosage according to what I read on a post I believe from MrsD is 300mg for the 1st month and 150mg after.

I also take Gabapentin (3) 100mg capsules WITH dinner. I can make it through the day but night can be bad. It took 2 weeks for my body to get use to it. I'm sure it helps with the burning and twitches because about an hour after I take it my sensations are considerably milder. If not for that I would get off of it.

I also use Aspercreme with Lidocaine for burning/pain and Morton's Epsom Salts for twitches. Also Topricin Cream is good.

I am looking into getting a compounded topical cream that includes Gabapentin and some other ingredients. Your doctor would need to be involved with that. There are posts on this if you search "compounding cream"

I didn't respond initially because I am retired and didn't fit into "Full or part time?" I was a teacher and if this had started when I was working I can't imagine what I'd have done. Probably been fired! Sleep is the minimum requirement to being surrounded by middle school students all day long

Hi Pinkynose,

Any side effects from taking the Benfotaimine?

Glad to hear you're retried...that must help a lot.

Cliffman

No side effects. It is not an immediate fix. This disease requires extraordinary patience. When this all began I started trying every supplement suggested I was so desperate. I now take very few. This is one of them. You can get more info on Benfotamine under "Supplements for PN"

What other supplements have you found to be helpful?

Cliffman

b12 methylcobalamin
slow mag

I had vitamin/mineral testing which showed deficiency in B1. My B12 was not high enough.

There are others I have taken in the past that may or may not have helped. I recently did a purge and am starting back on ones I'm not sure of 1 at a time. Generally speaking I'm a fan of anti- inflammatory supplements such as:
Curcumin, Omega 3's, folic acid and B vitamins in general. I will probably give alpha lipoic acid a try as many have said it helped them.

I do not know the cause of my symptoms so I gear myself toward supplements that decrease inflammation and ones others have suggested for my specific symptoms. I hope this helps.