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[QUOTE=Marlene;1178724]IMO, you do need to fix the copper issue since you have both hematological and CNS issue. Restoring copper can reverse the neutropenia but may not reverse the neurological damage. But it should halt further progression.
Figuring out the reason for the low copper may be necessary. It could be a metabolic issue that's genetic. If you cannot absorb enough via diet/supplements, IV may very well be necessary. I will look for the link on another website dedicated to bone marrow failure related to copper. Are your vitamin D, zinc, b12, folate and iron OK? Yes - interestingly all of these are well within normal limits. I suppose we may never know why my copper is off but seems like it does make sense and should be reasonably low risk to do the IV copper to see if it fixes the hematology. THANKS Marlene! |
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