Julie,

Here is information about B6 compiled by our dear Cara:
http://jccglutenfree.googlepages.com/vitaminb6


And here is an article from Alternative Medicine Review:
http://findarticles.com/p/articles/m..._6/ai_71948217

rose

Wings:

I completely agree with the strong emotion having an effect on the PN.

The other night I was feeling just fine. My son called, (he has loads of problems in his life), and in two seconds, my feet were on fire.

I just told my husband. "I hope he doesn't call for another month".

Boy, what stress does to a body!!!

Melody

Rose, thanks for all your support and information. I am always open to suggestions.

After a bout with increased symtoms due to sudden short term stress....do you have fewer symptoms for a few days after? Or does it just gradually go back to the pre-freak out level? I had a family upheaval right before my trip to see my daughter. In fact that was one of the reasons she insist I come because she felt I needed the break. It truly was fun and wonderful. She took me out for lobster, one of my most favorite foods in the world, we got to see my son's band perform, and attended a Harry Potter party. My symptoms didn't get worse...they seemed to stay the same. It was a couple of days or so after coming home that I noticed I wasn't having nearly the problems I had been.

And now that I'm back on the vitamins again...my symptoms are becoming worse again. Today was pretty bad. I took some Tramadol a bit ago and that's beginning to ease it off. *banging head on desk* I just don't know what to do anymore! Sigh. Taking a deep breath. I think I'll go to taking only the B-12, the C, E, and 400 of Folic Acid and see what happens. I've taken the latter three off and on for years with no problems. So we'll see.

I think stress plays a really big part! I took a week off from work last month. Slept as much as I wanted and did pretty much whatever I felt like doing . The pain eased up a bit and I was feeling pretty good. Within a day or two after going back to work the pain was back full force.

When my kids come over with my 2 year old grandchildren, (we have two of them) I get stressed after they have been here a while and start hurting. I love seeing them and being with them. But the noise levels and the constant on the go, just stresses me out.

By the way I searched some more today for P-5-P. So far no one has heard of it including the pharmacist I spoke with today. I will be going to a bigger health food store tomorrow.

--I think you'd have more luck Googling B6 P-5-P and looking through what you'll find that way:

http://search.yahoo.com/search?ei=ut...c&p=B6%20P-5-P

Most of us get it through on-line sellers.

Hi Jarrett I too have been through a very similar situation with the use of supplements and vitamins.I was taking around 9 different things to try and help my (suspected) neuropathy (I will post a separate message explaining my problem as I am new to these forums).I too, found that some symptoms seemed to be getting worse (increased pins and needles in my hands and feet and increased numbness in my upper back and face).One of the supplements I was taking was calcium and magnesium,I only took this for 4 days but I swear it made the problem worse so I stopped taking it altogether about 3 weeks ago.Now since last week I have stopped taking all my supplements as my back went really numb for some reason and it seemed to happen 30 mins after I had taken a lot of supplements. I also quit smoking (AGAIN!) :-) at the same time just in case that was causing the numbness to become worse. Now 7 days on and the symptoms have decreased a lot, so I guess I am going to start taking 1 supplement at a time and see what happens, im very sure that some of them do make my neuropathy worse.

First remember I have no clue what I'm doing so its a warning. Anyhow I was taking b12 and the b complex and I think it was adding to my dizzy and horrid neck. I still get it sometimes since stopped but not as long or bad. Not sure though. When I asked another forum about this they said I may have an allergy to it? I have no idea but like yesterday I didn't take it and I felt like dizzy so it may have no connection. I was researching the vitamin e and I think there is an upper limit to that which could be harmful. Now I may be wrong but something to look into. Also it may have not been with this but I heard when repairing it can make you feel worse. Like your body is confused. I'm not so with that idea is it seems with pn alot makes it worse now but supposely suppose to help. I'm sorry your having such a hard time too.

That's a relief! Not that you're having problems but that someone has experienced what I'm talking about. So that means it's *not* just all in my head. Thanks for that!

in your head...ABSOLUTELY it is not in the HEAD!
One of the things I learned pretty much the HARD way last year was about how B-6 is snuck into other supplements...it was 400x mdr in my multi b complex, in my calcium supplement in my fish oil...AND to make it worse, some vitamins cannot be taken near [time-wise] your pain meds.
It is spelled out in very fine print-I believe in a way not to be noticed and is very hard to find.
In my case, it was well-I used to take my thyroid med...wait 20-30 minutes then take my neurontin equivalent... Well, don't you know in that fine print they should ideally be taken 2-3 hours apart! Or the effectiveness of one or the other will be lessened or increased. And...then they can't be taken anywhere near any calcium supplements or you mite have similar effects/problems.
Docs aren't pharmacists, nor should they be...I suspect what they know of current pharmacological developments come from sales reps...and we all know how neurontin was initially sold then SOLD and not really tested. The initial 'testing' of neurotin was 4 years ago totally anecdotal from individual reports of off label usage from 150 users! Thus WE have to be the 'researchers'. I've cross referenced my med reactions -both common and uncommon and in that process I found out this stuff. Any drug cross check program doesn't include the lesser s/e's and I feel, somehow we are more susceptable to those lesser ones as well as the biggies. Doing the lists to cross reference was a pain where I've already some, but that I found at least 6 cross med/supplement reactions that wouldn't have been seen otherwise. It was worth the effort for my own peace of mind - tho a pain to put into practice
So, when you add supplements, do it ONE by ONE carefully...I've become very careful and suspcious about what I add [what it really is made up of] and when I add a new one, I make sure nothing else different is medically or supplement-wise changed while I try the NEW THING. That way I can more easily discern if it's helping [thru blood tests etc.] and not hurting. It gets confusing. I wish we were plain SIMPLER in what we have to do to try to get well. Maybe we at times...well, try too hard?
I hope this helps - and not confuse things more...we are already confused-Least I AM! - Good thoughts to all and pain free moments a-plenty! - j