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Old 12-05-2007, 09:52 PM #19
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LizaJane LizaJane is offline
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Join Date: Aug 2006
Location: Brooklyn, NY
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LizaJane LizaJane is offline
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LizaJane's Avatar
 
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
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I read your posts and all I think is *****, over and over. I'm hoping you get the bone metabolism folk sooner rather than later, and that the ortho who works with people with bone disorders can give you some glue injections or something similar for a bit more stability.

More than me, Billye has likely been adversely affected by fosamax. It's not associated with problems in the spine; the spontaneous fractures from it tend to be in the limbs. While it does prevent fractures of the spine, it doesnt' help any that do occur with healing.

And as Billye and I have done our reading on bone issues, we've also discovered that there's a pretty vast literature on how Vit D in substantial doses can prevent the bone loss of steroids, like prednisone. It would have been nice for either of us to have known that.

(I don't want to hijack this, but I'm not feeling a need for a new thread or post on my old one, so I'll just note briefly that I've had another CT scan to follow my spine, and with two months of Forteo behind me (a reasonable minimum for effect), at least two more screws have loosened. Between the pain I know and the pain I don't know---another surgery--I'm still choosing the pain I know.)
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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