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Old 02-04-2009, 09:18 AM #13
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nide44 nide44 is offline
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Join Date: Aug 2006
Location: Chesapeake Bay, Land O' Pleasant Livin'
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15 yr Member
nide44 nide44 is offline
Senior Member
nide44's Avatar
 
Join Date: Aug 2006
Location: Chesapeake Bay, Land O' Pleasant Livin'
Posts: 1,660
15 yr Member
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dmouse,
No one here thinks you are inagining your problems, nor will they think you are looking for attention.
Many of us have been told its 'in your head' and many of us have fired our docs for not having empathy towards us. I've fired almost a half dozen in 4 years.
Finding a doc that will work with you and understands your needs and problems is paramount.
Getting proper testing and a definitive diagnoses is too.
Glen's suggestion of the skin punch biopsy is a wise one. Not many places do it, and not many neuros can interpret the results properly. But it is the 'gold standard' for definitive diagnoses of small fiber neuropathy.
Mine was done at Johns Hopkins.
I think that the Jack Miller Center & Cornell-Weill, also do it.
Hopkins has a kit for sending back to them, if you cannot find a center near you, that does it properly.
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