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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#6 | ||
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Senior Member
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I'm sorry your husband left and so many friends. You can and will make new friends. I like the volunteer thought, so many good people use and truly appreciate the help and friendship....... Do you have a Y pool with temp at 86 degrees. I've really benefited from group water exercise- stretching etc. It's kept me mobile and even turned my toes back to touching the floor again. Visiting hospitals, children's hospitals can give us a connection with other people and a spirit of helping others. I know you will find your way. Do you have a local support group or could you start one? RSDSA has a list of groups, just put in your zip code. Keep in touch and let us know how you are. I am 61, live in Arizona, have full body RSD and internal now. I had a total meltdown at a new Dr. gyn a couple days ago. It was my first visit and she was so kind and wanted to know everything. Such a caring Dr. She is going to do research and talk to compounding pharmacist and make up a compound to try and help with the burning in pelvic region. Sometimes, we just don't realize how much we hold in till the flood gates open up. It's been 15 years now and living in AZ 12 years. So grateful our lifelong friends from Oregon still come every year to visit. They love to cook, so I don't have to worry about any of that. Our dear daughter and son in law are helpful and caring. I know it's very hard on our daughter. We only have the one child-30 yrs old- and we played tennis 5 times a week, guess you could call us fanatics. water skied, snow skied, traveled, horseback, I got this when she was 15 following breast surgery. Wasn't diagnosed for 4 years. But Dr. got me into therapy because of frozen shoulder and then remission for at least a year, then frozen shoulder in other shoulder, therapy, then another remission. I'm so grateful for the remissions. Her wedding was during one of the remissions. Yes, RSD has ruined my life too, but I concentrate on being grateful for various things, try my best to be creative, have goals, and time frames to reach goals, goals of weight loss-3200 mg of neurotin for a long time brought with it weight gain. I'm walking,refuse to give up -goal of traveling again- it's the fight of our life. Let's help each other to not give up. One of your friends, loretta |
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"Thanks for this!" says: | Kakimbo (05-02-2010) |
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