Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-26-2010, 12:54 AM #5
hope4thebest hope4thebest is offline
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Join Date: Jan 2009
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15 yr Member
hope4thebest hope4thebest is offline
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Join Date: Jan 2009
Posts: 305
15 yr Member
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Hi RuReady, and everyone..

I completely relate to your tomorrows !! ..mine were turning into 'never'..

I work full time and I'll tell ya, there are days when I don't know how I'm going to make it as the pain and burn can get so bad...financially, I have to work, I'm out of sick leave (this was a WC injury and surgery.. I have to use my sick leave and vacation days for any appointments or any absences) I am a one person department and if I'm not there, my job doesn't get done...and what I do is very time sensitive..

SO, in order to recover from the workweek , I plan nothing for the week-ends because I am so exhausted and the pain level is so unpredictable, plus I've isolated myself from friends...

i couldn't bear another summer going by without some good memories to feed from when I'm in desperation...and to have some time in the sun..

So for the month of July, I have made some week-end plans..I've got to start having a life..

This week-end I'm house-sitting for a friend who lives near the beach...

The week-end of the 10th, I 'plan' to spend the night at a hostel located on a bluff that overlooks the Pacific..(reasonable lodging)

The week-end after that, I 'plan' to spend the week-end at a meditation retreat, again near the ocean, sharing lodging with a friend.

I'm also planning to attend MsAndrea fundraiser in Santa Cruz!!! Is anyone else able and/or planning to go?

I am astounded that I have made these plans...and thank God for my mobility scooter (that WC approved last year....long story)

The plans have given me something to look forward to..
If the pain is too great, I'll have to cancel...but at least I'm finally making a weekend plan...

I'm going to try....Que sera, sera..does anyone have a plan they've been postponing out of fear of pain?

May all our tomorrows turn into today!
Hugs from Hope4thebest
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