Hi RuReady, and everyone..

I completely relate to your tomorrows !! ..mine were turning into 'never'..

I work full time and I'll tell ya, there are days when I don't know how I'm going to make it as the pain and burn can get so bad...financially, I have to work, I'm out of sick leave (this was a WC injury and surgery.. I have to use my sick leave and vacation days for any appointments or any absences) I am a one person department and if I'm not there, my job doesn't get done...and what I do is very time sensitive..

SO, in order to recover from the workweek , I plan nothing for the week-ends because I am so exhausted and the pain level is so unpredictable, plus I've isolated myself from friends...

i couldn't bear another summer going by without some good memories to feed from when I'm in desperation...and to have some time in the sun..

So for the month of July, I have made some week-end plans..I've got to start having a life..

This week-end I'm house-sitting for a friend who lives near the beach...

The week-end of the 10th, I 'plan' to spend the night at a hostel located on a bluff that overlooks the Pacific..(reasonable lodging)

The week-end after that, I 'plan' to spend the week-end at a meditation retreat, again near the ocean, sharing lodging with a friend.

I'm also planning to attend MsAndrea fundraiser in Santa Cruz!!! Is anyone else able and/or planning to go?

I am astounded that I have made these plans...and thank God for my mobility scooter (that WC approved last year....long story)

The plans have given me something to look forward to..
If the pain is too great, I'll have to cancel...but at least I'm finally making a weekend plan...

I'm going to try....Que sera, sera..does anyone have a plan they've been postponing out of fear of pain?

May all our tomorrows turn into today!
Hugs from Hope4thebest

Sometimes I have to plan like if I have an appointment but otherwise I take 1 day at a time. I know many here have more obligations then I so that is not possible. I just try to get through my days in the best possible manner mentally and physically. For my pain it is important to push but not too push too much where I pay for days after. For me it is also important to identify what is the physical pain I can't push through and the mental pain that makes me feel like I don't want to do anything. Especially when I have had a few ruff days pain wise back to back mentally I get down where I don't feel like do anything so that is important to push through. If I take on activity that I know will result in a high pain later it does make me anxious and hard to enjoy but at the same time I sometimes feel like I at least accomplished. It depends on the type of pain it results in.

how we can finish eachothers sentences and esp. relating to our pain... As I remember prior to RSD..never did I have to analysis my day..Lets see..if I go "there" is there a ramp?? Or how can I take as little steps as possible but get the same task accomplished??? Befoe I could fly around..packing so much into my day knowing I'd sleep that night.. I am sorry but we are all in the same boat..I'd much rather say I am alone on this as I need to figure this out with out having anyone else feel the pain.. and only describe it to you all here... But if we have one thing in common it would be our will to look toward tomorrow and never give up.. never but just make provisions from our life prior to our RSD....... Life is still beautiful and so are all of you!!!

Happy hugz, Kathy...KS

Keep smilin I agree that things that I used to never give a second thought or were natural have become something I have to think and stress about. I think that is where a lot of mental stress comes in. Where one has to worry about the little things that should not be a concern. I try to stay in the moment and remind myself some how I get through but still stressful. This condition and the people like all here have taught me hope. I try to hold onto it. Somedays I am better at it then others and in no way am I up to the people here in their outlook. Trying to learn and thankful to have good teachers so to speak on this board.

Hey D....

You are a very important part of our family here...Your experiences and advice here is noteworthy and very helpful...No king pins in this family...weezz.. a great family!! Best noted that we all have our days..days of low, hopeless feelings and other days when we can move mountains..that is why we take each day as it presents itself and try not to encompass too time ahead..Live in the moment and allow your mind and heart to feel the love..its free ..it feels much nicer that the pain and it will take us further...

Hugz....Kathy

RUR.......I hear ya !

For me....and I'm sure most of us, the wish to avaoid added pain is compounded by poor sleep and being exhausted all the time.

I usually feel like a need some external motivator to force me to do something, like going to an event or plans with friends, but I can't tell you how often I've had to cancel those type of things too.

Keep smilin thanks you have such words of comfort and wisdom
Finz for me it is a catch 22 sometimes when I have to be somewhere I can do it but I have also had to cancel. The other issue is with set plans is that it causes extreme anxiety before hand. Like if I don't feel well etc worries. So that is a stress in itself. I can very much relate to the lack of sleep. I guess it is just about doing the best we can in a bad situation and creating the best life we can with the limits we have.

Hey everyone!

I love your posts. I understand them and I feel at home to respond and share with all of you. Thank you for being honest about your hurts and your fears. This monster honestly scares the crap out of me and I feel very alone in my thoughts. I am having very contriversial (sp?) treatments and noone that I know has any knowledge of them but me and my doctor. It's very scary. This board has brought me out of my shell and has given me a sounding-board to feel secure enough to share and ask questions.

Without all of my friends here I would not be where I am with treatment or faith or the ability to cope. I have learned more from your posts than I could ever learn from a "trained professional".

I only hope that I have influenced one person and helped them to feel better. That would be my goal; just to have aided someone to have a better sense of relief and a sense of calmness. Love to all...

Kim

Yay!! Please enjoy and relax yourself. You deserve it!

h4tb...

Your plans sound wonderful, and very busy! I hope you enjoy each and every moment of them. Please tell MsAndrea that we all wish we could be there and we thank her for all of her accomplishments. She is a true force on nature and very glad she is rooting for herself and for us! Hope you have a wonderful time!

Kim