Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 03-12-2011, 10:26 AM #2
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
Default

Hello Karen,
You've come the right place, although I'm so sorry for the reason.
What a freak accident!

I've had rsd for over 27 years. It sounds as if you may have some TOS (thoracic outlet syndrome) involvement there too. As do I. (There is another thread on NT here, for that).
I'm glad you got such a quick diagnoses, (took me 7 years). They've got to be aggressive enough with your pain relief, so that you can do some stretching, but, I'd be careful about any kind of strengthening exercise. See if they don't torque up your headaches!

Your body will tell you what works/doesn't.
As you say the ice or heat. If they don't work, chuck 'em. (I use ice packs on my head, for headaches, but not for rsd, and most people will say they don't like ice on the rsd). Moist heat may come to work for neck, shoulder area.
Get some Eucerin (they make one called 'calming itch relief' too) or something like that for your right hand. (It dries from the inappropriate perspiration, the rsd).

I'd suggest that you talk to your neuro about more pain control (if you need it for therapy), and ask about TOS. He may want to send you to a hand specialist.

You'll have lots of friends here. If you like, you can PM me.

Also, I suggest you get over to to
www.rsdsa.org
Join.
It's a source of wonderful information.
Keep in mind too, that this disorder is 'Managed', not too often cured. But, you got a dx early, and that's your best chance to put it in remission. Do your reading and gather knowledge, all you can!

I wish you all the best, keep your chin up and appreciate all the good things!

Pete

ASB

Last edited by AintSoBad; 03-12-2011 at 10:31 AM. Reason: Forgotten words...duh.
AintSoBad is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
cndangel (03-13-2011)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Newly diagnosed--and new here...with q's kittychick78 Trigeminal Neuralgia 3 02-07-2011 09:14 PM
newly diagnosed with PN feeshgal Peripheral Neuropathy 6 02-14-2010 10:18 PM
Newly diagnosed sailprice Peripheral Neuropathy 8 12-16-2008 05:01 PM
Newly Diagnosed truthone76 Reflex Sympathetic Dystrophy (RSD and CRPS) 15 08-19-2007 08:58 AM
Newly diagnosed ali12 New Member Introductions 5 07-21-2007 12:21 PM


All times are GMT -5. The time now is 06:25 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.