Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-07-2011, 05:08 PM #9
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catra121 catra121 is offline
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Originally Posted by fmichael View Post
And on the matter of the guy’s ruling out CRPS, did he even check your toe nails or body hair? I too didn’t develop the classic symptoms until I was 2 and ½ years into this, but one Robert J. Schwartzman, MD was able to make a definitive diagnosis of CRPS based on such subtle things as “pilo-errection” of body hair. Hint: if you have been shaving your legs, stop immediately, so that one can be compared to the other. Also, no toe-nail polish! And ironically, had the doctor been using the newer “Budapest Criteria,” he might have had no trouble in making a CRPS Dx in the first place, that is if he had bothered to check out your toe-nails, body hair, etc. See Validation of proposed diagnostic criteria (the "Budapest Criteria") for Complex Regional Pain Syndrome. Harden RN, Bruehl S, Perez RS et al, Pain 2010 Aug;150(2):268-74. Epub 2010 May 20, ONLINE TEXT @ http://www.ncbi.nlm.nih.gov/pmc/arti...1/?tool=pubmed And for a full comparison if the two guidelines, see, Complex Regional Pain Syndrome: Treatment Guidelines - INTRODUCTION AND DIAGNOSTIC CONSIDERATIONS http://www.rsdsa.org/3/clinical_guidelines/index.html

Finally, I am advised that it’s no shame if someone gives you a Dx of some psychologically induced pain secondary to an underlying and real pain condition. That is NOT considered to be a psychiatric condition per se.

Sorry for going on so, but there was a lot I was trying to convey. I hope it’s useful.

Good luck as always.

Mike
Thanks so much Mike...I really appreciate everything that you have to say. I read through everything (had my mind spinning a bit to be honest) and it helps a lot to have that information to consider. A lot of the stuff early on in your reply (that I didn't quote above) really helped me to understand better what the neurologist was saying or trying to say. I mostly got there on my own after days of being angry, annoyed, and frustrated...but this sort of puts some backing behind what conclusions I came to after much thought and a calmer outlook.

Now...for the part above. Have not shaved my legs in months (not really up to doing anything at the moment that would require me to worry about things like my legs being shaved...). No toe nails painted either. But he most definitely did not look at either the hair or the nails that I could tell. And if he had looked at the nails on my CRPS foot he would have really noticed the abnormalities. But I consider that part just his not knowing what he was really talking about...which knocked his credibility down a few pegs for me even though on the other stuff he may be on to something (not sure about that...but willing to consider it).

And I think the key is getting to the right doctor. Gonna drop my primary care after today's visit because it was just ridiculous. And this isn't a reaction like I had with the neurologist or frustration over not having an answer yet...this is something that has been coming for a while but that I was reluctant to do because...well...he's been my doc my whole life. But he told me today that I need to give the NUCCA chiropracter thing a few months to see if it works, and if it doesn't then I "may just be one of those rare birds who can't hold an alignment and [I] may be stuck with these problems the rest of my life." Ummm...thanks doc...but I'm not ready to give up yet. He seems to think that all the possibilities have been ruled out when I think that's impossible at this point. I understand HE believes in this stuff and while I'm willing to give it a shot...I'm not ready to just give up on looking for other answers in the mean time. Literally doesn't want to run any more tests (not even to check to see if it's an infection). He literally said to me that my fevers and stuff are just inflammation related and that once my axis is properly aligned over the next few months then I will be just peachy keen.

Anyway...that's it. He's proven himself to be not only a quack (and an unethical on at that in my opinion) but to also be a dead end. So I called up my boyfriend's doc and made an appointment there for Monday. If I feel comfortable with what this woman has to say and feel like she can be my 'hub' during all this, then she will be my new primary care doctor. I'm 27 years old...not ready to give up on life just yet and waste valuable time on only pursuing one treatment option that to I don't really believe in and giving up on life if it doesn't work out. No sir.

Will keep everyone posted. Thanks so much to everyone for your support and advice. Helps keep me grounded and looking forward. I have my bad moments where I just need to cry or vent...but as long as I can get over those and keep moving forward, that's the thing.
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fmichael (04-08-2011)
 

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