Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-17-2011, 12:36 PM #10
lovefamilypets lovefamilypets is offline
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Join Date: Jun 2010
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lovefamilypets lovefamilypets is offline
Junior Member
 
Join Date: Jun 2010
Posts: 91
10 yr Member
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Hi 6kiddos,

So sorry to hear about everything you're going through. I can't answer all of your questions, but I have a couple things to add for some of them.
First, I hate wearing shoes too. Tennis shoes are completely out for me since as soon as I put them on the burning kicks in. I wear Naturalizers or Aerosoles. I have a pair of sandals and flats with these brands. For me they are comfortable and not as expensive as going to a specialized foot store.
I am on Lyrica 300mg a day. I have been on it for 2 years. It helped in the beginning for a couple months, but since hasn't done much (of course I'm not sure what would happen if I got off of it). As for paying for medical expenses, I wish I could help you. I think it is something we all struggle with. I looked at my budget and cut out whatever I didn't absolutely need so that I could spend that on medical care.
My only advice for treatments would be to do as much as you can in the first year since it seems like the longer one has this the harder it is to get rid of it. I hope that you find something that works! If you need anything else don't hesitate to post!
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