Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-10-2011, 07:00 PM #4
VanessaNicole VanessaNicole is offline
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Join Date: Apr 2011
Location: Illinois
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VanessaNicole VanessaNicole is offline
Junior Member
 
Join Date: Apr 2011
Location: Illinois
Posts: 8
10 yr Member
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Quote:
Originally Posted by Swatgen27 View Post
Hi,
I'm 29 years old and have CRPS in my lower limbs (from hips to toes). I also would like to have a baby and am hoping to start trying to concieve in September of this year.
Post CRPS my cycle did change. My cycle is now a 5 week cycle vs the normal 4 weeks. I have experienced my cycle skipping a month but this has only happened once.
I have tried to find research on bearing children with CRPS but have not found a lot of information on the subject so I was happy to hear that you are also trying.
I have tried every treatment under the sun to get off medications but nothing lasted so it appears that I will be trying to concieve while on medications. I worry about the baby being exposed to my medication regime. How far into the process are you? Are you also taking medications while trying to conceive?
I have briefly discussed this with my old doctor but recently changed physicians a month ago so I hope he to will be willing to help me through the whole process.
My husband is 32 and he also really wants a child so I'm hoping that I will be able to fulfill his dreams. I looked into adoption but found it to be extremely expensive and a really long process so Im going to try to conceive and then if that doesn't work I will pursue adoption or a seragacy arrangement. Thank you for your post and if any of my questions are to personal or make you feel uncomfortable then I apologize in advance.
Sarah
I wrote this whole darn response and it didnt post! I am so upset! I will write the short version and maybe we can exchange e-mails and talk because it seems like we have a lot in common and can help eachother! I am 26 years old(had CRPS since I was 23) my husband is almost 29. We both want kids real bad. I currently take neurontin and norco. Also get sympathetic nerve block shots every 8 weeks. Once I decide to get pregnant(if I can) I will stop taking meds completely. Doctor said the neurontin can cause major harm to the child and I will have to let him know if I decide to have a kid. My husband wants a kid but knows what will happen when I stop taking the meds, the attacks will come a lot more often and he doesnt think he can watch me go through that
again. I still get attacks but they dont come every other week like before. I get a bad one like once a month. I am in constant pain but that pain I learn to live with. Its amazing how people can learn to adapt to things. I have good and bad days, like everyone does. Mine are just different from everyone I know. My life revolves around my foot. Its strange. I never thought something like this would happen to me. I was scared when it did but I learned to adapt. I have my depressed day, why did this happen to me days. Then I have the accepting days. Its hard, but I already know im stuck with it so why dwell on it. I am terrified to stop the medication though! But I really want to be a mommy. So I am willing to do it.

What kind of meds are you on? I would seriously consider whether or not to take them while pregnant. Find out how they will affect your baby. I have also looked for stuff online about getting pregnant with CRPS but have found nothing. I guess we will have to learn from eachother! I am determined to do it. 9 months of an attack will be worth it. As soon as the baby is out I am back on the meds tho! =O) Thats if I can even get pregnant. I am praying! Bought an ovulation kit to find out if I even ovulate. I am praying the gyno is wrong! We will see! If you would like to e-mail let meI am going through and wants to have a baby like I do! BTW, We also have decided we wanted to start trying in August/September!
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