Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-21-2007, 09:19 AM #1
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Default April good and bad for me.

Bill and I would have been married 35 years on April 15th so it's going to be a very hard time for me. I am making some major changes and just wanted to share them with friends.

My VNS surgery is scheduled for April 11th. I'm scared but excited about that. I am scared because of the unknown afterward that may include the RSD in my face and not knowing what this VNS will do for me good and bad.

I am also moving. The kids helped me buy a mobile home in a very nice mobile home park just about 6 blocks from them and my Drs. office and everything else I need. I went to look at it yesterday and it's very nice. 14 by 70. 2 bedroom/ two bath.

Now comes the hard part again. I have to leave my home that Bill and I have shared and loved and actually had the hardest but the best time of our life in. We enjoyed fixing it the way we wanted it. I am going to have a hard time doing this I know. The good part is, I don't have to sell it. We are determined to keep it and it will be an extra income for me and the kids.

I have to start today advertising some of my bigger furniture and outdoor things and start going through stuff and packing. Bill gave me so many small things I told Susan I will not get rid of them. We are going to pack them and rent a storage. My boys also have 6 rockers. One he made for them when they were tiny and as they outgrew them they got antique rockers everytime they outgrew them. He has made them showcases, wall plaques with their names carved on them that I put hooks in and they are jewelry and belt hangers now, toy boxes, and i have their disney collection and other things.
I don't want to get rid of things and wish later on I hadn't. The man never walked in the house that he didn't bring me something so I won't part with them right now, maybe never.

I have to get a lot done by the 11th because of my surgery and then we are going to have a walkthrough sale. Then I have to get this place ready for rening so that won't be until after my surgery and the kids and friends will help with that.

I actually have had 2 people want to rent but I said no to both. I want someone in here that will take care of my yard and home. I am going to knock 50. off of the rent each month for them keeping up my yard.

I am going to screen them like they were going to buy this home. Bill and I managed a mobile home park for years and 2 apartment buildings so I know both sides of renting.

Any thoughts anyone could give me would be helpful because my mind does not always pick up things that I should know. Actually I have a time with my mind part of all of this illness and that gets to me the most.

I have to sat my boys down tonight and talk to them because they will be sharing a room over there and things will be different but I went I tell them they are in walking distance of my new home and the city pool and park is about 4 blocks away I have a feeling they will get excited too for that. I want to insure them that I am not getting rid of my home and the things Grandpa did and gave us. God this is hard, I cry as I write.

I just needed to share this with my other family. It seems like we have all been together forever. A lot of us as long as 9 years some of you more. I believe I came on the other forum around 98 and I have made some of the best friends here and met some.

Thanks for all of your help and support. Oh yeah, Anyone got a strong back left over from the RSDS. LOL

Thanks again,
Ada
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Old 03-21-2007, 09:58 AM #2
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lots of hugs for you ada. another member, billie, fancylady just went through this. i hope she sees your post.

i know it will be hard to pack up the precious treasures bill gave you. my prayer is that each one brings you memories of joy and love.

getting a storage unit is a smart thing to do. no regets later.

you are embarking on so many new advantures. it has to be scary, but exciting to. we are all here for you...night and day ada.


umm...no strong back here...sorry...mine is totaly wiped out. i can tape up boxes with lightening speed.
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Old 03-21-2007, 10:39 AM #3
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Default Just my 2 cents

Hiya!

Just my 2 cents, they are just things. Your husband, I believe in my heart, would have understood, your need to consolidate. He will probably even tell you when you meet again on the other side.

Take some pictures if you need to see them before you sell. Save a few precious items that mean so much to you.

But do not live in the past, live for the future. I know this is REALLY hard when we are all so sick, but do not forget to make room for new memories.

The storage unit idea is great, if you can afford it. If you cannot, then you need to do what you need to do.

I am sorry if this does not sound as nice as I hoped but I am tired today and the brain is not in full motion yet!

BIG Giant Gentle support hugs!

Rain
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Old 03-21-2007, 10:44 AM #4
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Default Hi Curious,

Thank you for the support. Tell Fancylady to email me and I have free long distance if she ever wants to talk. I have been so busy since Bill passed. I have had to start trying to get my flowers watered and fertilized. I have 21 rose bushes and too much more to name so it is a job. It took me 4 hours last week just to get my waterhoses hooked up and some of it watered. I have to do a little each day. I have been keeping up with several that don't come on anymore though and I talk to them at times. I feel guilty though at times that I haven't been able to call them. I can't hardly pick up a phone. I got more depressed and just couldn't talk to anyone without crying.

I just had another stress put on me but I made a decision after crying and thinking. I had an offer on my home. I know though it would mess up my disablity as I only owe 8 months on this one and I would have to blow the money or lose my check. I said I couldn't let go yet but he said no matter how long it takes.

I would settle for the taping Curious. LOL Bill did all of our packing. I am the absolute worse. He would pack it as I brought it to him and he could get 10 times more in a box then I could. He would not let me pack them and he wouldn't let me load the vehicle. I would carry the boxes to him and he would pack the way he wanted. Again he could get 10 times more on a truck then I can. I finally got to where I just stayed out of his way at times. He always thought too that certain things were man's work and it was his job to do it. He was overly protective of me and the family.

Now it's up to me to do most all of it. I do have old army trunks and a big trunk to put some of my most precious things in from him though. I have to get off of here and start. I will do a little at a time though.

I was wondering if you knew of stores that have bubblewrap cheap though. Walmart is too high for what little you get and I want quite a bit.

Thanks,
Ada
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Old 03-21-2007, 10:52 AM #5
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Default Hi Rain,

We posted at the same time. I know you are right about a lot of things. I am hoping the storage won't be but for a few months. The kids are looking to buy a home. I am looking at one today with them. They want more land and storage so this one looks perfect. Pray they like it because they have been looking for a year and I found it but according to what others we have seen it is the best for the buck. They will then take the boys things and the disney collection. I do have a shed at my other place but I will need room for some yard tools and car tools.

I am going through things one at a time. I know even though he brought me things he didn't always like them but he knew I did. I know what we both liked so that will go in my house but there are some things I am not sure I can make room for at this time so after I get in and get situated I will be able to know more what to keep or sell.

It's just hard. It was 4 months ago today that I lost him and it's just too much for me. Everyone says give it a year and that's what I plan on doing with the things we shared. I do have the memories too. We have pictures everywhere and we added more. My computer desk has some all over it. That was Devin's ideal. He is having just a hard a time as I am with this. He's talking about it though and Dustin isn't so I need to help them get through this too. I've learned not to rush into things.

Thanks again for the help. It isn't too harsh and by night I am so tired I talk like you think you do of the morning. LOL

Ada
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Old 03-21-2007, 06:20 PM #6
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Hi Dreambeliever-- I am sorry that you are having such a rough time lately. it sounds like you have made a lot of positive plans, though.

Just follow your heart, and the rest will all fall into place. One little piece at a time!

my thoughts and prayers are with you.

Sincerely,

brokenwings
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Old 03-22-2007, 12:27 PM #7
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Heart

ada...

i asked chemar...who has on online antiques biz, where she buys her bubble wrap. she doesn't.

local stores save the bubble wrap they get in their own shipments. like health food stores...art supply, gift shops. they normally just toss it out.

i hope you can find some that way. maybe get some good sturdy boxes too.

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Old 03-22-2007, 02:01 PM #8
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Default Hi Curious,

Thanks for the help. I ask Susan and she said that the packing places charge alot for bubblewrap and I need so much.

I had a lot of Wal-Mart bags and I am trying to wrap things up good enough that they don't get broke.

I can only make it until afternoon and I am going through the cronic fatigue but I do get a little done.

I'm pulling in recruits next week. A lot of my adopted kids are going to help me move so I think my first thing I am going to start doing now is packing what I know goes into my new home.

Ada
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Old 04-21-2007, 11:48 PM #9
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Cool Dreambeliever

Hiya!

Sorry I am so far behind on the boards, April is my first spring with the RSD and in NY the weather changes have really been kicking my butt.

How is your packing\move going and your spirits have been????

I am sorry if you have replied, in a different thread, as I mentioned behind...

Hugs,

Rain
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Old 04-22-2007, 08:00 AM #10
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Default Hi Rain,

I just saw the post and thought I'd reply.

It has been a very hard month for me. The kids took me last Sunday (which was Bill's and my 35th anniversary) to see a movie. The name of the movie was " Are We Done Yet". We had a great time. I laugh kind of loud so I am glad the whole thing wasn't histerical or they would have thown me out. But it was well worth going to see. I sat with Dustin and Devin and we had fun. They made it a point to include me so that was nice.

I would like to say I am completely moved but I can't. I know I have made at least 8 loads here, and 5 to the storage. I have a shed full here. What helped me, the kids decided to move in for awhile. I left a lot of things in my sheds after they decided to stay for awhile. Their goal is to get their place ready to sell. They will come out with a good enough profit to buy some land and to build. Travis says they are looking at a year. Then I will have that place to rent. They have already started working on it also. They have put in a chainlink fence, and started redoing the roof, and are having gravel brought in so after they move out it will be even nicer. They are also going to pay me rent. They made the down payment on my new place and have been paying my bills I can't pay since Bill passed so they have helped me a lot.

Moving here honestly hasn't done anything for my depression and missing Bill. I love it here since I am in town but it is a big reminder of Bill and I don't neve go out that I don't run into people that talk about him. He just was an unforgetable person. He wasn't a womanizer, I have no doubt on that one but he could make friends with both, since I live in a small town, everyone just about knew him from where he had the antique shop. I just can't shake the sadness and missing him.

I love this town though. I believe this to be the friendliest town I have ever been in in my life. I have lived in many and been to many but this town by far out does any of them.

I go in tomorrow to get the VNS turned on so I am hoping that does the job for me but we know it will take time for it to work if it does. I worry about a couple of the side effects as does my PCP but we are hopeful.

I do deal in antiques so I am closer to town to do that. I went to some yard sales yesterday and then went to a small flea market that we have here. I sat with two of my friends who were sat up there for hours just gabbing and laughing. People find it hard to believe that I deal with depression because I laugh so much. Deep down I have more depression in me then the dept of a 1000 foot well. Luckily no one gives me grief about it. I have the best friends and support system ever. I have no doubt on that one either.

Anyway, I am pretty much moved in within as much as I am bringing here. The Auction guy came also and picked up a boxed truck load of things which will be sold next weekend and I have that much more to sale. Susan and I are having a yard sale next Saturday. Too much to do.

Thanks for asking about me and so far I'm still trucking. Literly, I drive an old beat up pickup truck and I love it.

Have a great day,
Ada

Last edited by dreambeliever128; 04-22-2007 at 11:24 AM.
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