Originally Posted by kittycapucine1974

Hi, daniella:

If I forbid any of my doctors to touch any part of my legs or any part of the rest of my body (since I have generalized or full body RSD), I am afraid they will kick me out of their office for lack or refusal of cooperation (despite their knowing I have RSD) and I am afraid they will write something bad about me in my medical records for any potential new doctor to see (then this new doctor would not want to have me as a patient, because he/she would think I am a difficult patient). I need at least one doctor to prescribe the medications for my generalized RSD, for my epilepsy, for my Hashimoto's hypothyroidism, etc.

Quote: "Everyone is different though so I am not saying what you should or should not do."

My dream would be to have the legal right to tell any of my doctors not to touch me because of my generalized RSD without them having the legal right to kick me out or abandon me as a patient. I wish these doctors would understand it is not personal against them but because of my geberalized RSD that I prefer not to be touched anywhere.

Quote: "Would there be a skin doctor if not an infectious specialist?"

There are skin specialists in French Polynesia (I think they are called dermatologists). If I cannot find an infectious disease specialist, I will try the dermatologist.

As for my two-year-old baby boy, I feel like I am a terrible mother to him. I love him from the bottom of my heart; he is the treasure of my life. I feel like I should be able to do more for him instead of crying because of my RSD pain and making him cry because he saw me cry. I can tell my son loves me but I live in fear he will stop loving me as he grows up, especially when he realizes I am a sick and disabled mother. Will this not make him feel ashamed in front of his friends to have such a mother? I have to mention he had a transplant of one heart, two lungs, and two kidneys. I would do anything for him to have a better and happy life because it is not easy and fun being sick and disabled.

I thank you for your information and kind words.