RSD?CRPS Is Suicide The Only Cure?

alt1268 · 07-17-2012, 05:46 AM

Keep in mine what happened to JOB. He also suffered, but through it all he never faulted against GOD and in the end he prevailed.

Look on my albums there is a picture of my rollabout. You put your knee on it and push with the other foot.

Quote:

Originally Posted by polarisgold

Thanks for responding. I am trying to believe the same thing about God. It is so hard to think God is loving and yet allows this daily torture to go on and on. My daughter has grown up with me here but not able to participate, same with the wife. What a burden! They have told me that they love me and I believe them.

What is a rollabout? Sounds like I could use one.

Not going to off myself anytime soon, just fells like my future.

Paul

betsykk · 07-17-2012, 07:17 AM

I too would most definitely recommend ketamine. It as helped my daughter so much with her pain.

Jimking · 07-17-2012, 08:02 AM

You've had RSD since 98 and never seen a pain specialist? If that is the case keep in mind not all pain specialist are equal, so don't get discouraged if you run into one who knows absolutely nothing about RSD. Educate them if at all possible and bring your wife with you if possible too. Very important to have someone bat for you, very important.

polarisgold · 07-17-2012, 11:57 AM

Quote:

Originally Posted by painman2009

Hi paul. first a hug out to u man ..a soft manly one.
I too have been on the brink of loosing my house, as well as wife and kids.
I too am on mdcd. and comp covers the red. my wife works to support myself and four kids. (in NY) so I feel your pain. RSD started in my right foot knee and hip. to now every thing below the waist and working on both arms belly head and surgical scars. and walking sucks. i have gained over 125 lbs in one year. and I too am fighting a wheel chair. the roller walker wheel chair is great.(its by DRIVE) cvs might have it for 200. or less. it has helped me be a part of my kids life if only as a spectator. I want to address an remark you made. its about suicide not being mentioned in the bible. It has!! in fact it is a commandment, and we all know it. "thou shall not kill" suicide is taking a life and if I may add a life worthy to keep around. I believe you have much to still offer the world, and much still to learn from it,(it is my belief this is why we exist, to tend gods garden, learn the benefits of life , to experience them, and to bring our experiences back to our great whole..(god). your child will learn from what ever you decide to teach. And you have much left to teach. and love wow even in pain and misery the love you still have to give to your wife and child. focus on that

I know it gets me through every day. yeah my kids argue, they are a pain in the behind!! but thats why they r kids. I am still amazed by the ,their energy , the way they approach new things and the way they soak up new information. ..Its selfish but I know I live to not miss out on their lives. I try to imagine it and well this is where I'm a tad of a mush..If I live to experience this pain, Just so my kids do not have to then I will do it. well my friend (Paul). I want you to also considerate this as you read my response..
My name is Paul as well>> lol... ok silly but as I saw what you wrote then I saw your name, I said god means for me to answer this. so yes I also agree that we are all here for a purpose to serve a larger design.
god gave us a family, god gave us our life , god gave us guidelines to live by, and yes god allowed us to get this beast. I teach my kids that they were born to a mother and father whom both wanted and loved them, but we didn't choose their form, or order, god did, and the trials of life . so we may not know why or how but we do know that we get only what god believes we can face. challenges and all. you were brought to this site to help you through. you pray often for guidance. I live my day by day with one phrase or (poem )always in my mind. read it . believe it. "foot prints".

You are loved , and admired. that is worth it all. but when it gets to hard to deal with alone. come here and find companionship, understanding, and love.
good luck my friend. I hope this has helped you. I look forward to you future postings. and when you feel weak come her for some strength . god speed and god bless

Thanks for taking the time to reply, Paul.

I may have a plan to off myself but seriously doubt I'd do it unless it becomes totally unbearable. I have rsd in my left foot and after 13 years it is starting in my right foot. Saying walking sucks is an understatement! I am generally upbeat during the day unless pushed to do too much. I don't know where I'm going with this post......so I'll end it with a question that can't be answered: What is the measure of the verse that goes something like " God says he will not give you more than you can bare"? I feel like He has allowed more than I can bare and yet I'm still here. So I guess He has not given more than I can bare......gotta go this post is going nowhere. sorry..

mbrgold339 · 07-17-2012, 12:50 PM

Paul, Sadly this disease robs us of a full life. As another said, Life is about the small things. I was diagnosed in 2000. In 2004 I carefully planned and tried to execute (excuse the pun)

my plan for suicide. Much to my dismay I awoke intubated in an ICU two weeks later. The recovery from my botched attempt left me worse off than before. Now, I just have that as another RSD related diagnosis on my health record. I understand getting to the point of no return. I understand the struggles. The effect we have on our family and what friends we have left. BUT. had I been successful, I would have missed my daughters wedding, the birth of my darling

(now 4 yr old) grandaughter, and now sharing my daughters second pregnancy. I pray you can find focus away death. Today is a really bad day for me. I'm diverting my attention to avoid further frustration. I now understand the adage "one day at a time" Sometimes "One minute at a time" Look for the small things an avoid the elephant in the room. There's no doubt, this disease sucks but until God calls you home, there is purpose in your being. I will pray for solace.

RSD31 · 07-17-2012, 03:43 PM

hi i know where you are coming from if you want to talk please call me i have had RSD since 1980 from a car accident an they did not get it right ontil 1988 and i'm still going today Jerry 807-274-6907

AintSoBad · 07-17-2012, 04:38 PM

Paul, I'm Pete... I've had RSD, tos, several vertabrae, and apnea, then an aquirired head injury since '83 then another traumatic injury in '98. Add them up.
Just had a full body bone scan and results last week It's All bad.
Full Body pain Constantly even with methadone, and other meds, anti depressants, etch.
Still, I've come to realize mostly from the folks here, that I'd only be Increasing the Pain on my family (whom don't even speak to me). They're right!
Why the hell would I want to do that?
No pain that God would allow us to go through, that he didn't let his Son, is worth it!!!!

So, what kind of Puss would that make us?

Get your *** to a doctor who will give you the meds that will help!
This is NO WAY to talk!

Print this entire list out, and take it to the doctor with you!
GET Help, you've got painful depression~

I love you, and so do all of us here!

Please, Paul, I want to hear back from you!!!! OK?

Do this, and do us All a favor!

Stop this crazy thinking, and get the relief you need!
It IS AVAILABLE!
SEEK IT OUT!

I'm Here For You!

I'll be checking back!

(We can't leave phone #'s or email Addy's here, because the search engines will pick them right up, but, you can PM Me, or any of us!) OK??????

Gonna be looking out for you!

Pete

Remember, I've had this bear, and More, since '83! That's taking me on 30 years! Have lost Everything..... Now, I've got to start rebuilding! And, You can too!!

XO

scottym · 07-18-2012, 10:55 PM

Brother, your life can be joyous again. But the doctors are only going to mask your pain, not tear it out by the roots. I was diagnosed with RSD same year as you, 1998, but I learned how to rid myself of it by 2000. I haven't had any symptoms since then. It would be my honor to share with you what I learned. Shoot me a direct email or respond to this post I'll tell you what you need to know. (btw, it doesn't involve any medical treatment -- it's all stuff you do by yourself in the comfort of your home and -- best part -- doesn't cost anything.) Whatever you decide to do, my heart goes out to you. No one should have to suffer like you are.

mellowguy · 07-19-2012, 09:49 AM

Pleaase re-think all your options. I have had rsd since 1997 but, was not diagnosed until 1999. I recieved it due to a work related injury and had several surgeries. I tried Trigger point injections, Acupuncture,a tens unit, a hot tub (medical reasons=tax right off), massage therapy,physical therapy for 14 months. I'm on a variety of pain killers but, only takes the edge off. I thought of leaving this world many timed because of pain. But because of my children I find other things thast actually work. I noticed when I hold my pet cockatoo, my pain level goes down. Somethiing about caring for an animal helps. I also listen to music that calms me. But, the one thing I did find that helps, and this is for information only. I was advised by a relative who works in the medical community to try a little marijuana, I found out just by going to Google and type in "Medical Marijuana" and you'll find over 15 states that have it legal for certain diseases including RSD/CRPS. I tried it and found within minutes my pain was diminished enough that I can live a life. I can leave the house, visit friends, do gardening and a lot of thiings around the house I couldn't before for 11 yrs. I'm in contact with my state legislature who is in favor for legalizing marijuana for medical use, We would be the 16 or 17th state to legalize it for medical use. It stopped my ides of going to sleep for good. Just type in "Medical Marijuana" on Google or ASK.com and you'll be surprised. Be sure to consult your Dr. before trying anything not prescribed. Good Luck

painman2009 · 07-20-2012, 01:14 AM

Quote:

Originally Posted by polarisgold

Thanks for taking the time to reply, Paul.

I may have a plan to off myself but seriously doubt I'd do it unless it becomes totally unbearable. I have rsd in my left foot and after 13 years it is starting in my right foot. Saying walking sucks is an understatement! I am generally upbeat during the day unless pushed to do too much. I don't know where I'm going with this post......so I'll end it with a question that can't be answered: What is the measure of the verse that goes something like " God says he will not give you more than you can bare"? I feel like He has allowed more than I can bare and yet I'm still here. So I guess He has not given more than I can bare......gotta go this post is going nowhere. sorry..

I survive daily with this knowledge.. Tomorrow will happen no matter what we do. look to today and today alone and deal with what is thrown at you when it comes. again tomorrow is going to happen any way just live the best you can . today. and when it gets rough " and it gets rough a lot" come see your friends here.
We are a community built on the mutual need for friendship, understanding, and a home to vent... to find our perspective.... " If you have friends and family that are willing.. have them visit this site and learn from ll of our pain... also try to find a local RSD group that you may join. It helps to know that some-one lives close to you understands you and this "BEAST" called RSD
and of course we are here too as you have seen..

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